vocal chord cancer (T1) laser treatment, need advice

Have had laser surgery in sept for early vocal chord t1 cancer and was told it was successful but a month ago I had a check up which revealed there has been a reacurrance ( though only small and on the surface) so have had more laser surgery in the hope that will do the trick as the surgeon says its too small to warrant radiotherapy. Has anyone else had this kind of treatment and is this usual?( reacurrance and more lasering). I'm very concerned that this treatment may not be working or that cancer may keep coming back, resulting in radiotherapy and the possibility of eventually loosing my voice box. I know its early days and I'm probably worrying too much but would be very grateful if there is anyone out there who can comment on this.

Parents
  • Hi Zarker

    I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

    I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

    On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

    I wish you well and hope that the next laser treatment will be the end of it.

    Marion x

  • Hi Marion ,

    Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

    p,s gave up smoking 5 years ago and after this will never go back to it!

  • Hi All, I would like to ask and find out if anyone who had radio had any issues with thyroid after treatment? When i had my first check up i mentioned my fatigue and the Doc said he would do a thyroid test and it has come back overactive? He commented that the radio to my larynx may have "drifted" and can effect the thyroid, apparantly it is not obviously diagnosed as it mirrors the side effects of radiotherapy, ie fatigue etc. But it plays a massive role in many energy systems of the body and being a regular runner it has become almost impossible. I did have a sore achey feeling down the sides of my adams apple but put that down to psychosematic stress as my first check up was looming!! not realising at the time that is where the thyroid is situated!  It is rather tender and hoping if anyone who has had similar experience of this could shed some light on it?

  • Hi Lorna

    Great news!  You must be both so relieved.  Hope the CT scan brings good news as well.

    Have a lovely holiday and hopefully you will both be able to relax now.

    Keep us posted.

    Love Marion x

  • Hi all just to let you all know my husband got the all clear again yesterday that's 10 months and counting I hope everyone else is doing ok it is so long since anyone posted god bless to you all fingers and toes crossed for us all big hugs luckyus

  • Hi Luckyus

    That's great news - nearly at the landmark one year which is quite a milestone!  It's so nice to see you reviving this thread.

    Since I last 'spoke' to you I did the half marathon Shine Walk (overnight walk) for Cancer Research and raised over £2,200 with my 2 sister in laws.  The Charity got in touch with me to ask me to go up on stage and say a few words of inspiration so that was a bit nerve racking!  I had a broken toe at the time so it was tough going but I'm so glad I did it.

    My voice comes and goes (it's not good at the moment) but I try not to panic like I used to.  It's just one of those things that I am getting used to and such a small price to pay.

    I hope your husband continues to keep well and keep in touch.

    Love Marion x

  • hi luckyus

    really glad to hear that things are good with your husband.

    Best wishes

  • Hi Luckyus,

    Great to hear your husband is continuing to get the all clear, you must be very pleased and releived, and so lucky your husband didn't have to go through RT, living up to your username :-)

    I had my third  3 monthly check up in sept and got the all clear so am really happy about that, like Marion my voice is very up and down but I can generally communcate much better than I did before and as Marion said its a small price to pay.

    Hope things continue to go well for you.

    Best Wishes

    Andy

  • Hi Marion,

    Well done on your on your walk, a fantastic achievement! You must be very chuffed and proud of your self, I am!

    Glad all is well with you,  lets try and get together before christmas.

    Andy x

  • Hi Marion

    well done on your walk and giving a talk how proud of yourself to have come so far this thread was my life line when we first found out even before I became a member I read it from start to finish looking for hope and this is where I found it thanks to many people writing down their experience sending a big hug to you luckyus x

  • Hi Andy

    Yes indeed my sarcasam ar 5am has proved lucky for us

    Great news that you are now on your third all clear may it continue for many years to come (for us all) you were so helpful when I felt so desperate and lost I think that is the beauty of this site real people opening their hearts to others

    Thank  you

    Luckyus x

  • sweetie...radition didnt work for me please ask for side affects with that treament......it should help.all my teeth broke off.if its t1 then go for it...just ask them about your teeth and other side affects.cause they wont unless u ask.iwent 5 days a week gor 2 months..hope your ok

Reply Children
  • Hi

    I know this thread has been quiet for a long while but just wondered how everyone is doing now? I was recenlty diagnosed with severe vocal cord dysplasia which seems how a few people started on their journeys.

    It was cold steel removed and I've just had my first check up and it was all clear but my throat does still get sore. I asked the consultant abou this and he said acid reflux but I've had a test for this which came back negative to so not sure what to think?

    If anyone is still checking this tread be great to know how everyones treatment turned out.

    Thanks

  • Hi happydays yes this is an old thread my husband had t1 cancer lasered and had his 4 year check up yesterday and still all clear x x how's everyone else doing x

  • I've just been diagnosed with severe dysplasia, I walked around for a couple of hours in a daze, then came home and found this website.  Feel so much better for reading everyone¿s stories and I will hopefully be okay after my first laser treatment ¿ keeping everything crossed¿

  • Hello Londonmale,

    I'm glad that you feel it's helped to read other people' stories.

    Just to let you know that we have lots of information about cancer on our Cancer Help website. If you'd like to have a look you can find the information here .

    We also have a team of specialist nurses that you can call for support and information. They are available Monday to Friday 9am to 5pm on 0808 800 4040 (which is free to call from a UK landline and most mobile networks).

    best wishes,

    Jenn

    Cancer Chat moderator