Hi Zarker

I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

I wish you well and hope that the next laser treatment will be the end of it.

Marion x

Hi Marion ,

Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

p,s gave up smoking 5 years ago and after this will never go back to it!

Hi Topstriker

Great news that all was well at your appointment.  Don't worry about which nostril they put the scope in as they can see the whole larynx with either nostril.  My consultant always asks me which one I prefer and funnily it seems more comfortable on the left side - that could be down to my broken nose though!  Speaking of breaks - yes my little toe is very painful and hurts with my shoes pressing against it. I'm doing a 13 mile Shine Walk for cancer research on 1 October so I'm not able to practise which is worrying!

Sorry to hear about your other illness, I have never heard of gilberts syndrome.  I know it's frustrating been so fatigued and not having a lot of energy but it's all normal and will get better over time.

I wish you well and let us know how you are getting on from time to time.

Take care

Love Marion x

Hi Lorna

I hope the results were good yesterday.  It's all such a worry waiting around for results and that could be the reason for your husband's tiredness rather than anything sinister.

It's hard not to jump to conclusions with every ache and pain - I do it myself all the time!  Any pain in my neck or hoarseness in my voice I used to automatically think the cancer had come back.

Let us know how he gets on.

Love Marion x

hi marion

thanks yes we had some v good news there seems to be no cancer there now so doesnt want to see us till nov

going for ct scan tomorrow fingers crossed.

going away on the 31st to fuerteventura i think itll do us good.

yes  i seem to be reading more into everuthing. thanks you for being there

lorna

xx god bless everyone whose fighting

xx

Hi Lona

What great news i think fear of all aches and pains is very common and your wonder if it is anything else starting up.

Hope you have a great holiday

All the best

Luckyus

Hi All, I would like to ask and find out if anyone who had radio had any issues with thyroid after treatment? When i had my first check up i mentioned my fatigue and the Doc said he would do a thyroid test and it has come back overactive? He commented that the radio to my larynx may have "drifted" and can effect the thyroid, apparantly it is not obviously diagnosed as it mirrors the side effects of radiotherapy, ie fatigue etc. But it plays a massive role in many energy systems of the body and being a regular runner it has become almost impossible. I did have a sore achey feeling down the sides of my adams apple but put that down to psychosematic stress as my first check up was looming!! not realising at the time that is where the thyroid is situated!  It is rather tender and hoping if anyone who has had similar experience of this could shed some light on it?

Hi Lorna

Great news!  You must be both so relieved.  Hope the CT scan brings good news as well.

Have a lovely holiday and hopefully you will both be able to relax now.

Keep us posted.

Love Marion x

Hi all just to let you all know my husband got the all clear again yesterday that's 10 months and counting I hope everyone else is doing ok it is so long since anyone posted god bless to you all fingers and toes crossed for us all big hugs luckyus

Hi Luckyus

That's great news - nearly at the landmark one year which is quite a milestone!  It's so nice to see you reviving this thread.

Since I last 'spoke' to you I did the half marathon Shine Walk (overnight walk) for Cancer Research and raised over £2,200 with my 2 sister in laws.  The Charity got in touch with me to ask me to go up on stage and say a few words of inspiration so that was a bit nerve racking!  I had a broken toe at the time so it was tough going but I'm so glad I did it.

My voice comes and goes (it's not good at the moment) but I try not to panic like I used to.  It's just one of those things that I am getting used to and such a small price to pay.

I hope your husband continues to keep well and keep in touch.

Love Marion x

hi luckyus

really glad to hear that things are good with your husband.

Best wishes

Hi Luckyus,

Great to hear your husband is continuing to get the all clear, you must be very pleased and releived, and so lucky your husband didn't have to go through RT, living up to your username :-)

I had my third  3 monthly check up in sept and got the all clear so am really happy about that, like Marion my voice is very up and down but I can generally communcate much better than I did before and as Marion said its a small price to pay.

Hope things continue to go well for you.

Best Wishes

Andy

Hi Luckyus,

Great to hear your husband is continuing to get the all clear, you must be very pleased and releived, and so lucky your husband didn't have to go through RT, living up to your username :-)

I had my third  3 monthly check up in sept and got the all clear so am really happy about that, like Marion my voice is very up and down but I can generally communcate much better than I did before and as Marion said its a small price to pay.

Hope things continue to go well for you.

Best Wishes

Andy

Hi Andy

Yes indeed my sarcasam ar 5am has proved lucky for us

Great news that you are now on your third all clear may it continue for many years to come (for us all) you were so helpful when I felt so desperate and lost I think that is the beauty of this site real people opening their hearts to others

Thank  you

Luckyus x