vocal chord cancer (T1) laser treatment, need advice

Have had laser surgery in sept for early vocal chord t1 cancer and was told it was successful but a month ago I had a check up which revealed there has been a reacurrance ( though only small and on the surface) so have had more laser surgery in the hope that will do the trick as the surgeon says its too small to warrant radiotherapy. Has anyone else had this kind of treatment and is this usual?( reacurrance and more lasering). I'm very concerned that this treatment may not be working or that cancer may keep coming back, resulting in radiotherapy and the possibility of eventually loosing my voice box. I know its early days and I'm probably worrying too much but would be very grateful if there is anyone out there who can comment on this.

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  • Hi Zarker

    I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

    I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

    On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

    I wish you well and hope that the next laser treatment will be the end of it.

    Marion x

  • Hi Marion ,

    Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

    p,s gave up smoking 5 years ago and after this will never go back to it!

  • Have a fab holiday Marion and yes lets get together when you get back>

    Love Andy x

  • Hi Zarker, Thanks again for your response, it has put my mind at rest knowing that tne voice issue is par for the course! I often feel like i have mucus at the bottom of my throat and try to clear it but nothing happens, like you say it is probably some swelling that feels alien and makes me feel i want to try and clear it. I do a lot of running, i actually ran my way through treatment! but i have been suffering with asthma, i have got a little tight chested in the past but nothing on this scale, if i forget my pump before i run its a nightmare! my gp thinks its probably due to swelling and irritation of the airways and should settle down again? When i had my CT scan after being diagnosed they said my tumour didnt even show on the scan! it was originally to check elsewhere in my body, so my question was if it is not showing where you know i have it, how can you be so sure in other parts of my body! But apparntly my tumour is flat, not a lump, it spread along the surface area, and therefore less likely to show up.

    I still run most days, sometimes i feel really good and other days i struggle, i think it really helps me mentally and physically, i swear it helped me cope with the treatment, and saw a piece on the news last week about how they are recommending excersice for cancer patients these days! As you probably know i was diagnosed 3 days before this years London Marathon, and as a twist of fate i was running for Macmillan! I still ran my best time, 2.46.23 and came 340th!

    Thanks again for putting my mind at rest and it also helps to know that it is quite straightforward when i go back on the 30th for my results, fingers crossed!

    All the best, Steve.

  • hi

    can anybody help me out there please as ive explained in my previous posts my husband has had t1 laryngeal cancer and had laser treatment went back 2 weeks ago for a check up and he is now going back in for more laser on the 22 aug and also biopsies to see if the cancer has returned, but the las couple of days he has being having a pain in his right ear has anyone out there experienced anything similar.

    thanks again for reading xx

  • Hi Lornawales.

    I had the same as your husband, I had radio for my cancer after 2 biopsys , I had lazer on one side of my larynx and after a couple of months it had moved to the other side, the soreness could be because of the lazer it might have made it swell a bit, there is a lot of nerves around the larynx.

    Whebn he goes to the hospital ask the doctors about it .

    I live in north wales.

    joe ninty

  • thanks joeninty i will so did you have laser first before raditherapy? they have said there is another lump there but not sure wot it is that why he is going in again to liverpool next week. we also live in north wales.

  • Hi Lornawales.

    Yes I did have lazer twice before I had radio, they thought that the lazer would get rid of the cancer on my right vocal cord, but they sugested I have 6 weeks of radio to clear it up,

    My neck was a bit swollen after the lazer but it went down after a couple of weeks, it affects people differently, some I have talked to dont have a lot of discomfort after treatment.

    do you live near the wrexham hospital, where I had all my treatment, I see they have moved a lot of treatments to other hospitals since I had my op.

    let me know how you get on. my treatment was a bit more than that.if you want to know anymore get back to me.

    joeninty.

  • thankfor your post will keep in touch with you. no we live in caernarfon and can only have laser in liverpool.

    will speak to you soon keep well

  • Hi Steve, very impressed in several ways about your marathon run this year.

    All the best for the 30th

    Jelo

  • well not long to wait now my husband going in tomorrow to livepool having laser and biopsies done on monday

    jusdt got to wait now to know what the lump is .

    im slightly worried as just the last few days the pain in the ear has gone but says he cant hear through it !!!!

    hopefully im worrying for nothing will let you all know the outcome next week

    love to you all keep safe xxx

  • Hi Lornawales.

    Hope everything goes alright next week, I know what it is like waiting for news, how long will it be before they give you the results after the lazer,

    Tell you husband we all wish him all the best.

    joeninty.

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