Hi Zarker

I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

I wish you well and hope that the next laser treatment will be the end of it.

Marion x

Hi Marion ,

Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

p,s gave up smoking 5 years ago and after this will never go back to it!

Hi there,

Regarding insurance I just got a basic cover and didn't mention the cancer, I think travel insurance only really covers you for things that happen to you while your there eg, accidents, lost luggage, flight cancellations etc, these things are much more of a risk  and to be honest its unlikely now that your husband is going to become ill as a result of the cancer while he's away especially as he is having clear scans.

I'm probably sounding a bit lapse but from what I have heard from people who do declare past illness's the insurance companies always find a way of not paying out and will charge you a fortune for cover, I got quotes of up to £300 for 1 week!!

Don't let what I have said sway you though, you must do what you think is right for you, its just my opinion.

Glad to hear your husband is doing so well and have a great holiday

take Care

Andy

Have a fab holiday Marion and yes lets get together when you get back>

Love Andy x

Hi Zarker, Thanks again for your response, it has put my mind at rest knowing that tne voice issue is par for the course! I often feel like i have mucus at the bottom of my throat and try to clear it but nothing happens, like you say it is probably some swelling that feels alien and makes me feel i want to try and clear it. I do a lot of running, i actually ran my way through treatment! but i have been suffering with asthma, i have got a little tight chested in the past but nothing on this scale, if i forget my pump before i run its a nightmare! my gp thinks its probably due to swelling and irritation of the airways and should settle down again? When i had my CT scan after being diagnosed they said my tumour didnt even show on the scan! it was originally to check elsewhere in my body, so my question was if it is not showing where you know i have it, how can you be so sure in other parts of my body! But apparntly my tumour is flat, not a lump, it spread along the surface area, and therefore less likely to show up.

I still run most days, sometimes i feel really good and other days i struggle, i think it really helps me mentally and physically, i swear it helped me cope with the treatment, and saw a piece on the news last week about how they are recommending excersice for cancer patients these days! As you probably know i was diagnosed 3 days before this years London Marathon, and as a twist of fate i was running for Macmillan! I still ran my best time, 2.46.23 and came 340th!

Thanks again for putting my mind at rest and it also helps to know that it is quite straightforward when i go back on the 30th for my results, fingers crossed!

All the best, Steve.

hi

can anybody help me out there please as ive explained in my previous posts my husband has had t1 laryngeal cancer and had laser treatment went back 2 weeks ago for a check up and he is now going back in for more laser on the 22 aug and also biopsies to see if the cancer has returned, but the las couple of days he has being having a pain in his right ear has anyone out there experienced anything similar.

thanks again for reading xx

Hi Lornawales.

I had the same as your husband, I had radio for my cancer after 2 biopsys , I had lazer on one side of my larynx and after a couple of months it had moved to the other side, the soreness could be because of the lazer it might have made it swell a bit, there is a lot of nerves around the larynx.

Whebn he goes to the hospital ask the doctors about it .

I live in north wales.

joe ninty

thanks joeninty i will so did you have laser first before raditherapy? they have said there is another lump there but not sure wot it is that why he is going in again to liverpool next week. we also live in north wales.

Hi Lornawales.

Yes I did have lazer twice before I had radio, they thought that the lazer would get rid of the cancer on my right vocal cord, but they sugested I have 6 weeks of radio to clear it up,

My neck was a bit swollen after the lazer but it went down after a couple of weeks, it affects people differently, some I have talked to dont have a lot of discomfort after treatment.

do you live near the wrexham hospital, where I had all my treatment, I see they have moved a lot of treatments to other hospitals since I had my op.

let me know how you get on. my treatment was a bit more than that.if you want to know anymore get back to me.

joeninty.

thankfor your post will keep in touch with you. no we live in caernarfon and can only have laser in liverpool.

will speak to you soon keep well

Hi Steve, very impressed in several ways about your marathon run this year.

All the best for the 30th

Jelo

well not long to wait now my husband going in tomorrow to livepool having laser and biopsies done on monday

jusdt got to wait now to know what the lump is .

im slightly worried as just the last few days the pain in the ear has gone but says he cant hear through it !!!!

hopefully im worrying for nothing will let you all know the outcome next week

love to you all keep safe xxx

well not long to wait now my husband going in tomorrow to livepool having laser and biopsies done on monday

jusdt got to wait now to know what the lump is .

im slightly worried as just the last few days the pain in the ear has gone but says he cant hear through it !!!!

hopefully im worrying for nothing will let you all know the outcome next week

love to you all keep safe xxx

Hi Lornawales.

Hope everything goes alright next week, I know what it is like waiting for news, how long will it be before they give you the results after the lazer,

Tell you husband we all wish him all the best.

joeninty.

lothanks joeninety

i really dont know how long weve got to wait but i hope not too long

thank for the support will come back with some news next week  xxx

lorna wales

Hi Lornawales

I got back from holiday last week and haven't been on this site.  Just wondered if your husband got his results back and hope it's all OK.

Marion x

hi marion

thanks for your post glad you had a good holiday but for the toe!

we are going back tomorrow for the results of the last biopsy which he had 2 weeks ago. i am hoping all ok the consultant seemed v positive saying he thought it might be just a polyp here hoping!

but saying that i dont know if anyone can help but my husband seems to be getting v tired lately, hes starting to admit himself.

i know you shouldnt think too deeply into things but i cant help worrying he is also complaining of back pain,(could be me overeacting i suppose)

but we are having another cat scan on fri so this should shed some light on things!!

thanks to anybody who takes the time to read this as im probably just going on and on !

take care

love

lorna xxx

Hi Lorna

I hope the results were good yesterday.  It's all such a worry waiting around for results and that could be the reason for your husband's tiredness rather than anything sinister.

It's hard not to jump to conclusions with every ache and pain - I do it myself all the time!  Any pain in my neck or hoarseness in my voice I used to automatically think the cancer had come back.

Let us know how he gets on.

Love Marion x

hi marion

thanks yes we had some v good news there seems to be no cancer there now so doesnt want to see us till nov

going for ct scan tomorrow fingers crossed.

going away on the 31st to fuerteventura i think itll do us good.

yes  i seem to be reading more into everuthing. thanks you for being there

lorna

xx god bless everyone whose fighting

xx

Hi Lona

What great news i think fear of all aches and pains is very common and your wonder if it is anything else starting up.

Hope you have a great holiday

All the best

Luckyus

Hi All, I would like to ask and find out if anyone who had radio had any issues with thyroid after treatment? When i had my first check up i mentioned my fatigue and the Doc said he would do a thyroid test and it has come back overactive? He commented that the radio to my larynx may have "drifted" and can effect the thyroid, apparantly it is not obviously diagnosed as it mirrors the side effects of radiotherapy, ie fatigue etc. But it plays a massive role in many energy systems of the body and being a regular runner it has become almost impossible. I did have a sore achey feeling down the sides of my adams apple but put that down to psychosematic stress as my first check up was looming!! not realising at the time that is where the thyroid is situated!  It is rather tender and hoping if anyone who has had similar experience of this could shed some light on it?

Hi Lorna

Great news!  You must be both so relieved.  Hope the CT scan brings good news as well.

Have a lovely holiday and hopefully you will both be able to relax now.

Keep us posted.

Love Marion x

Hi all just to let you all know my husband got the all clear again yesterday that's 10 months and counting I hope everyone else is doing ok it is so long since anyone posted god bless to you all fingers and toes crossed for us all big hugs luckyus