vocal chord cancer (T1) laser treatment, need advice

Have had laser surgery in sept for early vocal chord t1 cancer and was told it was successful but a month ago I had a check up which revealed there has been a reacurrance ( though only small and on the surface) so have had more laser surgery in the hope that will do the trick as the surgeon says its too small to warrant radiotherapy. Has anyone else had this kind of treatment and is this usual?( reacurrance and more lasering). I'm very concerned that this treatment may not be working or that cancer may keep coming back, resulting in radiotherapy and the possibility of eventually loosing my voice box. I know its early days and I'm probably worrying too much but would be very grateful if there is anyone out there who can comment on this.

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  • Hi Zarker

    I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

    I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

    On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

    I wish you well and hope that the next laser treatment will be the end of it.

    Marion x

  • Hi Marion ,

    Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

    p,s gave up smoking 5 years ago and after this will never go back to it!

  • Hi Marion,

    Yes would have liked to have had 10 weeks off on full pay! but like you said its much better to be doing something and I feel ok in my self apart from the voice. Its so frustrating as I really love my job and this is the time of the year I could be picking up new clients but I can't really take anyone on at the moment sounding like this.

    My present clients have been wonderful and are ok with me whispering and tell me to shut up if I;m talking too much! Guess I have to patient and wait for everything to heal. I spoke to my consultant's assistant today who said this was all normal and consistent with post radiotherapy and also said it was ok to work as long as i don't over do it.

    Would be good so see a photo of you and put the face to the name, will try and put one up of me.

    Thanks again marion and hope all is well with you and will certainly let you know when my voice is back then we can arrange a get together with chris :-)

    Andy x

  • Hi Marion/Andy

    Hope your both well.

    Marion firstly thanks for mail other day. I will reply when I get a spare 10 mins. Life is hectic at moment going from the North to London every week and trying to spend time with Kids at weekend.

    Andy,

    I'm glad your on road to recovery but try not to push yourself too hard. I know you want to get back and you need to work  but don't try and run before you can walk. I am sure your voice will improve but as I told you other week on phone my voice is still improving even now 6 months after my RT and there are dips in it some days. I guess it is a long road to recovery and there will always be times when it is not as good as you hope but try and remember the bad times when you had no voice at all. Things will get better.

    We must sort that drink out soon. I will be in London until the end of May. I am working on olympics at Stratford so on Central line. Can get anywhere in 30 mins so Just choose somewhere to go.

    Speak soon,

    Chris

  • Hi Andy

    Sounds like you've got your clients sorted out and they understand the situation.  Lets hope they do as they're told and won't need you to shout at them ;-)

    It's bad timing that you can't take any new clients on at the moment as this is the perfect time for getting fit post-Christmas but there will be the Spring when people will want a beach body!  I keep meaning to go to the gym but I bought myself a wii fit  ....... must get round to using it though!

    As my photo isn't coming up with my messages, have a look at my profile as it's on that.

    We'll have to get together while Chris is still in London, so let us know when you're feeling well enough as I can go anywhere on the tube.

    Speak soon.

    Love Marion x

  • Hi Chris

    Nice to see you on cancer chat!

    Just replied to Andy about meeting up.  I can do any place, any time, any where (I sound like the Martini advert but don't think you're old enough to remember it)!  It will have to be before end of May so hope Andy will be up to it.

    Email you soon.

    Love Marion x

  • Hi yes would be good to catch up soon, perhaps early march might be good, hopefully my voice will be back by then and and perhaps we can meet somewhere central or convenient for all of us and somewhere not too noisy! I think chris is in london till the  May,let me know what you think, will text chris as well. Saw your pic, very nice! you don't look your age :-) Got mine up too, its good to have a face to the name and we will recognise each other when we meet, hopefully!

    Speak soon

    Love Andy x

  • Hi Andy

    I have a little confession - the photo is a few years old ;-)  I don't think I've changed much since then though and I don't have any recent ones on my own.  It's good to see you too - quite exciting to put a face to a name at last!  I don't know what I've done wrong with my photo as it's not coming up with my messages.  I might try deleting it and uploading it again.

    I'll leave it up to you and Chris to decide when to meet up and I'll go with the flow.  I'm in London anyway so it will be easy for me to come straight from work.  Hopefully you will be feeling much better by then and I'm sure your voice will come back soon. 

    Speak soon.

    Love Marion x

  • Hi Marion,

    Actually so is mine! It was the best one I could find as I don't have too many pics of my self on my own. Things have taken a dip this week, my throat has got sore again and i'm coughing up a lot of gunge, the doctor thinks I may have an infection or an ulcer in my throat so has put me on antibiotics. I was coughing so much last night my neighbour called me to find out if I was alright, have spoken to the hospital who say its the RT still doing its work, i'm getting to the point when I wonder if i'll ever feel normal again! Its strange as everything else feels ok and I really thought up to this week that all that was getting better, still its early days yet I guess.

    I really want to have my voice back when we all meet as it would be great to have a good old natter and a laugh which I can't do too well at the moment which is why i'm delaying things a bit, I hope this is ok with you and chris. I think we al deserve a nice glass of champagne after all weve'e been through! Glad to hear all is good with you.

    Bye for now

    Love Andy

  • Hi chris,

    thanks for your message. you are right I do need to take things slowly, i'm a bit impatient generally and like everything done yesterday and can't bear all this uncertainty as its 3 week since the Rt and my voice is still only a whisper. I was told the otherday that the RT can keep working up to a month after it ends so perhpas this is why there's no change and my throat is very sore still.

    So your working at the olympic site! must be exciting seeing it all take shape, been meaning to get up there and have a look but havent got round to it, will you get tickets for any of the events next year? I think london will be rammed in 2012 especially with the queens diamond jubillee as well, still it will bring a lot of money into the capital.

    Glad to hear your voice is holding up chris and that everything is going well for you, you and marion are living proof there's light at the end of the tunnel. We will definately get together before the end of may, I mentioned to marion about early march as I hopefully my voice will be back by then. Let me know what you think.

    Have a good w/e.

    Andy

  • Hi Andy

    Sorry to hear things have taken a dip. No wonder your voice hasn't come back with all that coughing - imagine how much strain that's putting on your vocal cords plus all the gunge will prevent your larynx from moving freely.  I always get a bit hoarse when I have cough now but I suppose there will always be a weakness there.

    Re the RT still working up to a month after you've finished treatment - my side affects got a lot worse a week or 2 after I had finished treatment and from then on it gradually got better.  It's still early days as you say and I promise your voice will improve and it might just come back all of a sudden and surprise you!  I remember the first time I went to say something expecting to sound like Phylis Pearce and this normal voice came out - I was ecstatic!  At first it came and went until eventually it got stronger.  Even now It still goes a bit hoarse if I talk too much or too loudly.  I went to the Television Awards on Wednesday night and after talking to my friends over all that noise my voice is a bit husky ever since.

    I've accepted you as a friend so we can talk privately about meeting up if you like?

    Hope you feel better soon.

    Love Marion x

  • Hi Andy And Marion

    Love seeing your photo's its nice to put a face to the names  andy i hope you just keep getting stronger and your results are all good when you get them. Marion " Television awards" wow told you ,you looked good it must be the company you keep i am sooooooooo jelous (xx)

    Well love to you both

    Luckyus

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  • Hi Andy And Marion

    Love seeing your photo's its nice to put a face to the names  andy i hope you just keep getting stronger and your results are all good when you get them. Marion " Television awards" wow told you ,you looked good it must be the company you keep i am sooooooooo jelous (xx)

    Well love to you both

    Luckyus

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