Hi Zarker

I had severe displacia of the vocal chords around 5 years ago and was told that I needed laser treatment immediately as it "was very close to cancer". I had laser treatment a few times and had to have biopsies done around every 2 - 3 months but in my case it had gone too deep so they could only laser the surface and it kept coming back. If you are a smoker you should give it up immediately as my consultant told me to avoid smoke at all costs.

I went on to have larygneal cancer but I was stage T2-3 when I was eventually diagnosed. I was successfully treated with radiotherapy 28 months ago and touch wood everything is fine and my voice is better than it's been for years.

On a positive note they are closely monitoring you and as you are at a very early stage hopefully they will be able to get rid of it with laser treatment alone.

I wish you well and hope that the next laser treatment will be the end of it.

Marion x

Hi Marion ,

Thanks very much for your reply it was most helpful. I hope you don't mind me asking but how long was it from when they found displacia to you being diagnosed with laryngeal cancer? As this is what I think may be happening to me. They said inicially It could be treated with laser alone and after my last laser treatment yesterday that the return was on the surface only and did not warrant rdiotherapy at the moment and he had done deeper biopsys which he says hes sure arn't cancerous. This has as you know been a very difficult time for me as i'm so scared of loosing my voice or having to have a laryngectomy which I've been told is unlikely. i'm reassured to know that after your treatment your voice is now good. Thank you again and I hope you continue to do well. Andy

p,s gave up smoking 5 years ago and after this will never go back to it!

Marion, Andy,

Thanks once again for your repies. It is good to be able to be in communication with people who have had the same experiencies it really is a great help.

I will take on board both your comments regarding water as at the moment I am not drinking hardly any and am mainly on tea all day long with I am sure will dry it out. I have been advised not to drink in case it aggrevates the dysplasia until my next check up so I may go crazy and have a cordial or two next time I am out!!!!!

I hope that my voice returns to the levels both yours have as I am struggling at work at the moment as I have to hold a lot of meetings on construction sites so you can imagine the background noises I am up against. I think I have been pencilled in for some speech therapy in the the next couple of weeks so hopefully this also will have a positive effect. I think at the moment I may be expecting too much as it is only just over 3 weeks since my op so I would of thought they will still be swollen from the lasers.

Once again thanks and I will keep you posted.

Chris

Hi Andy

Just wanted to say good luck for your appointment on 10th Feb - what a coincedence, mine is the same day!! Let's post afterwards and compare notes?

Best Wishes

Marion x

Hi Marion,

Thanks for that and of course same to you, yes that is a coincidence. I always get worried about the check ups as I hate the whole experience having to wait for ages as the clinics always over run, I get really stressed worrying about the result but i'm trying to stay positive as the last result was encouraging so keeping my fingers crossed. Yes lets compare notes and hope we both get good news. speak soon.

Andy x

Hi Marion, Hope all is well with you. Hope you don't mind me messaging you again but things have taken a bit of a dip with my voice. Up to about the end of feb my voice was really good almost back to normal then on my 50th birthday I threw a party and noticed that with all the noise my voice became very hoarse and it was a real struggle to talk to everyone, this had'nt been a problem since my last op but since that night things have become steadily worse and I now struggle to speak normally above back ground noise and seem to have no volume in my voice. Its really getting me down as I thought I had got my voice back almost to normal after the op and now I feel back to square one. I feel incredibly self conscious when I meet new people as they always ask whats wrong with my voice or they can't hear what i'm saying.

At my last check up they said the left side of my vocal chord looked sore and that they thought it was due to the scarring from the laser treatment,and they are keeping an eye on it to see if it changes. The consultant also said that my voice may never get any better and the more lasering I have the worse it will get, which was really depressing to hear. You mentioned that your voice came back to normal after radiotherapy. I just wondered did you have lasering done too? I'm thinking that perhaps if the cancer has come back I might be better off having radiotherapy as I can't bear the thought of my voice getting worse. I would love to have the hope that one day my voice like yours would improve but I know every case is different. Have my next check up on weds and am dreading it as I have a feeling they are going to say I need more treatment. Hope you don't mind me getting in touch but am feeling very isolated as friends have been good but they don't really understand how difficult this is for me. Best wishes. Andy

Hi Zacker.

I had 10 weeks of radiotherapy on my vocal cords, I had trouble with my voice after, is took a long time to come back but it wasnt as strong as before, you say you are seeing your doctor, is he giving you a check up after your treatment or do you thing it is something else, you may be worrying to much, I had the same as you 2 years ago and got through it stay calm and dont worry till you find out with your doctor, let me know what he says.

joeninty

Hi Andy

How weird, I don't go on this site very much but I decided to look today and saw your message.

I'm really sorry to hear your voice is not so good. Another coincidence - mine has been a bit hoarse the last couple of weeks which is quite unusual for me and I have just brought my appointment forward to this Wednesday - so again, we are going on the same day!

In answer to your question about lasering, I did have lasering done about 3 times but had at least 9 biopsies without laser. My voice was really quite hoarse most of the time and I was always getting asked if I had a sore throat. After laser treatment my voice was bad for about 2 weeks or so then it slowly recovered - but it was always (and still is) very prone to straining. I don't think we realised how much we're shouting over noise but it's very difficult when you are in that environment.

I know you are worried that your dysplacia will turn to cancer but it doesn't mean it is inevitable that will happen although that won't stop you worrying! I'm fed up with people telling me not to worry - they haven't been through it!

It is strange that my voice went back to normal after 38 blasts of radiotherapy - I had naturally assumed that it would be worse than when I had the dysplacia. I don't know if everyone is as lucky though as I was told my voice could be better or even worse than before - everyone is different.

Please let me know how you get on at the hospital on Wednesday and I will let you know how I got on too.

I will be keeping my fingers crossed for you.

Take care and try and think positive (easier said than done I know).

Love Marion x

Hi Marion, thanks so much for your reply its good to know there are people who understand how frustrating this whole thing is, was having a down day today just feeling like i'm the only person around suffering with this as everyone I hear has nice loud clear healthy sounding voices something I miss so much. It was really good of you to reply and thank you for your kind words and reassurance. Thank god for the internet, to find people like your self, although we have never even met who are willing to share their experiences, it is most appreciated. Will let you know how I get on on weds, am dreading it but trying to be positive I hope yours goes well and I will be thinking of you on weds. Thanks again Marion

Love Andy x

Thank you very much for your reply, had my last treatment in dec so they are keeping an eye on me monthly. will let you know how I get on. m thanks

Andy

Hi Andy

Everything was fine with me (thank god) and I go back in 3 months time. How did you get on? I was thinking of you today when I was waiting in the clinic.

Let me know, hope it was all ok.

Love Marion x

Hi Marion,

Glad to hear all was ok with you. Surprisingly my result was a lot better than expected. He had a look and said it looked the best he had seen it and the area affected on the surface was greatly reduced and that he thought I was 95 per cent there with the treatment, although he still wants to see me every month. I was so relieved to hear that as my voice has been so bad this wk I was convinced it would be bad news. He also said my voice would improve in time and that my current hoarseness is probably due to me straining my voice, not getting enough voice rest and getting stressed about how I sound. I'm taking my self off to the lake district this w/e walking so I can rest my voice. Thanks again for your support and great to hear you are ok. Have a lovely w/e.

Love

Andy

Hi Marion,

Glad to hear all was ok with you. Surprisingly my result was a lot better than expected. He had a look and said it looked the best he had seen it and the area affected on the surface was greatly reduced and that he thought I was 95 per cent there with the treatment, although he still wants to see me every month. I was so relieved to hear that as my voice has been so bad this wk I was convinced it would be bad news. He also said my voice would improve in time and that my current hoarseness is probably due to me straining my voice, not getting enough voice rest and getting stressed about how I sound. I'm taking my self off to the lake district this w/e walking so I can rest my voice. Thanks again for your support and great to hear you are ok. Have a lovely w/e.

Love

Andy

Andy,Marion

I have just read your posts and would like to say that good news comes in three's. However I can't. I had a check up yesterday (by coincidence) and mine has come back again. The consultant sais it looks beningn but needs to take it off and biopsy as per ususal.

Obviously I am a bit down and annoyed but am learning now that stress and worry is making it worse so I am trying to keep calm, but this is not easy with a new 1 week old babay in the house, but you can't choose when it comes or not.

By coincidence I was speaking to a friend of my neighbour who had exactly the same as me a few years ago, mine is caused by the HPV virus causing papillomas with dysplasia in them, and he had 12 op's in 4 years. However he now sounds great after the virus just regressed for no reason and he has had no signs of it coming back so there is light at the end of the tunnel. The hardest thing at the moment is the worry of keeping my Job as work is getting a bit scarce it it comes down to survival of the fittest!!!!

Anyway glad you both had good results and will keep you posted. I am having my op next Wednesday so fingers crossed.

Chris

Hi Chris.

Hope your operation goes well there is not a lot that you can do about cancer all you can do is stay possitve, I have had 3 operations for throat cancer and a major op to get rid of it I am well now not back to how I was before but better, I did a abseil down a castle last saturday for Hope House charity only 65 feet, so best of luck , best of health and happyness for the future.

JOENINTY

hI Zacker.

Nice to here everything has gone well for you, my voice took a lot to settle down I know it is hard not being able to speak when you want to. look forward to getting better and getting about, I come from the north east and think the lake district is one of the best areas to go. have a nice time.

JOENINTY.

Hi Chris,

Sorry to hear your news, I know exactly how you feel as twice now I have gone for my check up to be told that my displacia had come back, the first time resulting in another operation. You just feel disappointed and frustrated, I think the thing to focus on is that this isn't an over night fix and its a bit of a journey on road of recovery and we are lucky that we are being constantly monitored so that hopefully we can avoid a more serious health problem which would be harder to treat. Having said this its hard not to worry and get stressed about it as your mind works overtime imagining all sorts of things most of which don't apply to us coupled with the difficulty of actually speaking properly. Although my result was good my voice has been terrible this week part of which I put down to stress and worry and having to talk at work etc when I should be resting my voice. I think its going to be quite a while before my voice comes back properly and I know it won't be like it was before but I live with the hope that one day it will and trying to stay positive, and not stress and worry, but it is difficult . I hope your op goes well on weds and I will be thinking of you, let me know how you get on and try and put it out of your mind this w/e.

All the best Chris

Speak soon

Andy

Hi thanks very much for your reply and kind words. Love the lake district so really looking forward to it. Have a great weekend. Andy

Hi Andy

I'm so glad to hear you had good news at the clinic! I was wondering - have you been offered speech therapy? It might help you to use your voice without straining it and help you to relax, because when you are stressed your neck muscles tighten and it affects your voice.

Keep in touch and hope you stay healthy.

Love Marion x

Hi Chris

I was so sorry to hear that you have to go in for another biopsy tomorrow. Please let me know how you get on. I expect you will have to wait for 2 weeks for the results though? Try not to worry as I have been down that road so many times and most of the time it was good news.

I'm keeping my fingers crossed for you.

Take care,

Love Marion x

Marion, Andy, Joe,

Hope your all well.

Just a short update as to where I am after last biopsy. The dyspalsia is still there and the consultant was concerned at the frequency of the growths returning so he has put me forward for radiotherapy. I go for my first consultation on Thursday and then will find out what is going to happen.

From what he was saying when I saw him last week I will getting the therapy for 3 weeks only so not a full course i presume. Part of me is nervous but in a strange way I am quite happy this is going to sorted hopefully once and for all as I am 90% certain it has returned already.

The only thing worrying me is how my voice is going to be afterwards but to be honest it is awful now so fingers crossed for an improvement.

I will keep you updated on how I go.

Chris

Hi Chris,

Sorry to hear that but I'm sure as you say, this will get you sorted once and for all so you can get on with your life. As you know marion had radiotherapy and has since got her voice back so i'm sure you will be ok. Since we last spoke my voice has been steadily getting worse and although my check up in april went well my last one revealed some imflamation so he has put me on steroids and antibiotics to help reduce it, and its been slightly better, but if that doesn't work I will have to have another biopsy by laser, so 1 step forward 2 back! I have a feeling that I may too eventually have to go down the radiotherapy route if all this doesn't work. guess we just have to try and stay positive and focus on getting our selves well. I do long to be able to talk properly, I watch other people do what I used to be able to do and they do it so effortlessly! I'm sure and hope it will be the same for us one day soon, may take a little longer but WE WILL GET THERE. All the best chris and hope the treatment goes well for you and it isn't too disruptive. Please feel free to msg me when ever you want if you fancy a chat. This site has been a god send for me as Its good to talk with others who are going through the same thing as sometimes I feel like the only person in the world with a bad voice! Take care mate, speak soon.

Andy

Hi Chris

Just want to wish you good luck at your consulation on Thursday and I'm so sorry that the news wasn't good. You will have to be fitted with a radiotherapy mask and will have a tiny "tattoo" on your chest so that can "line you up" for the treatment but all part of the planning that's necessary. Please do ask me anything you need to know about the treatment and side effects. I can give you my email address if you want so you can email me if you ever want reassurance or need to ask anything from someone who's experienced this nasty disease.

You will probably find that when the treatment is all over and you recover, your voice will be much better than it is now. I have my 'normal' voice back and although I try not to strain it, my voice is perfect after having years of a very husky, hoarse voice. Ttry not to worry about your voice, the important thing is that you focus on the treatment and hopefully clear it up once and for all!

Take care and please let us know how you get on after your appointment.

Love Marion x