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Lymph node swellings, told likely metastatic

Elly-may
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Hi… I can t believe I am here and am in total turmoil.

I am 59 and went to drs with firm neck lump. Was told it was a muscle and given muscle relaxant medication to take for 8 days. They didn’t work.  Went back and put on 2ww. Had ultra sound and was told accidentally “I think it is’. Then an immediate FNA was carried out there and then. A week later I got a report in my care saying likely metastasis but inconclusive. Ent said likely a lymphoma or spread from somewhere else.

I was then sent for full body  Pet-ct and head and neck MRI. I have also had a core biopsy.

These tests started 2 and a half months ago. Still no results and no appointment booked going forward.

Going out of my mind.  

  • Offline in reply to Elly-may

    We seem to be a mirror image of each other!  Got hubby to hold my hand, hope you have someone with you too.  Will be thinking of you on Monday, I will catch up with you after the dreaded day, try to be positive, I know it is really hard and it is absolutely draining on your mental health.  I am saying to the people that I have had to tell (like my employer who have been marvelous) that it is "business as usual" until I tell them otherwise.  Take care my luv and i wish you all the very best of luck. Quick question for you, how big is your lump and do you feel unwell? X

  • Offline in reply to Lindajane

    We certainly do seem to be a mirror image! Awww glad hubby is with you. I’m single but I have my 3 wonderful children who will take it in turns for various appointments. We will definitely have to catch up on each other’s diagnosis. 
    This is strange though because I’ve said exactly the same to my employer, who has also been amazing!

    My lump is 12mm but think it has grown a bit since first US. How about yours?

  • Offline in reply to Elly-may

    Hi Elly-May mine is hugenow and has lumps on lumps and is matted all down the left side of my neck.  It started as a grape size and now it is more like a bunch!  My boss says it looks like inspect bites (I wish).  I think surgery is the only option for this tumour unless chemo etc can reduce it.  Do you feel well in yourself? 

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