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Misdiagnosed - originally told I had an anal fissure but now I've been diagnosed with advanced rectal cancer. I'm scared

Nannybear-69
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Hi all

I just recently diagnosed with rectal cancer then it spread to my liver and now on my lymph node on my right groin 

But for 8 weeks was told it was an anal fissure 

I am scared I have good days and bad days too 

  • Offline

    Heya.

    Welcome to the forums. One thing I found helpful was keeping a feelings diary. I wrote in it each week describing my feelings. I also took up sewing and puzzles as well. I also recommend finding out more about what to expect each week. Make sure to get contact details and so on. Read free cancer information booklets. Your hospital should have copies of those in question here. Best wishes.

    You can do this. Also ask about open cancer research trials. Take it easy. Keep us updated. 

  • Offline in reply to Bone-cancer-patient

    I started a journal on 29th March and I write in it everyday saying what I eat do how im feeling and if I get any visitors as im housebound at the moment as I cant physically get into a car.the only time I go any where is for hospital appointments and thats by ambulance. I've started knitting again and ive done so much colouring which I will leave for my grandkids so they can look at them and say nanny did that for me 

  • Offline

    Hi

    Really sorry to hear of your diagnosis.  What treatment are they giving you? 

  • Offline in reply to Grannysoscared

    Im having chemo to see if it will shrink but at moment its in my liver a lot more then after my 4th session I'm going to have another scan and see from the results what the next plan of action is 

    Thank you for replying. It's a bit of a shock as I was told for nearly 7weeks its just anal fissure tear 

  • Offline in reply to Nannybear-69

    Really hope the treatment works for you. Ive got my colonoscopy which theyve rushed through this morning.  Ive got a 10cm lesion on my liver so am not too hopeful on the outcome today. 

  • Hello Nannybear-69

    I'm sorry to hear that you were recently diagnosed with rectal cancer that has spread to your liver. It's understandable that you're riding a rollercoaster of emotions at the moment. Hopefully you next scan will show some positive news, and the team will be able to offer you some reassurance. 

    I wanted to reply and to tag in another member,  aka David, who has previously been through treatment for bowel cancer, which had spread to the liver. David successfully went through treatment and has been able to share his experiences with others, which I know has offered hope to people who find themselves in similar circumstances. Hopefully, he'll pop along soon to say hello. 

    I also wanted to say that if you ever want to chat with one of our nurses, please do give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that things progress well for you Nannybear-69. Do keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline in reply to Moderator Jenn

    Thank you for that I just hate the fact every day is totally different from the day before. I'm so used to be doing things then suddenly not able to do things is a big blow in ur face. 

  • Offline in reply to Nannybear-69

    Hello Nannybear-69,

    the reality of finding yourself on a daily rollercoaster,both physical and mentally does take some getting used to, and coming to terms with that is the hard part.but doing so makes everything easier after that even though your body will be going through it.

    The key is that you need to find that place where your mind supports your body allowing it the best chance to overcome the challenges it willf face. From here on you no longer can afford the luxury of stressing yourself ,giving your invader any advantage. Accepting and understanding you cannot change your journey ,,but realising you can affect and choose how you will travel it will be the foundation upon which to direct yourself towards your destination of choice.

    This is the one and only thing that you have full control over, bringing that to your future treatment plan gives that and all your medical teams treatments the greatest chance of success.

    At this stage the uncertainty is the hardest thing to deal with, but if you can replace the what if thoughts with it will be what it will be, but l will put myself in the best place to meet it, a mindful determined calmness.can occur.

    Without getting to far ahead at this early stage, l would say that you already have some positives on your side, your treatment is in progress,you will be closely monitored, treatments and knowledge have improved considerably over the past twelve years since l was diagnosed with similar.

    You are aware of your next milestone in four weeks time, their will be many more to follow try not to put any more pressure upon yourself other than that the chemo will impart..

    One step at a  time, always moving forward, slowly but surely add up to a distance successfully travelled over time.Travelling that gently with your mind fully supporting your body is such a huge part of your ability to overcome your adversary that you will truly understand in hindsight.

    Take care, your race is no sprint but a marathon and pacing yourself to cross that finish line is key,

    David

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