recently diagnosed, doesn't seem real

I got diagnosed 4 days ago with T Cell Lymphoma. It's a rare one but luckily seems to be caught very early. now its at the stage of having further testing on the biopsy to determine if it is an easily treatable variant, or if it's actually going to be really serious and really hard. hopefully its the better one, (seems like it could be) but who know until the results come back, cancer was never something i thought would come up in the first place! i feel in shock and very distracted. i have amazing support around me and i understand why there is an emphasis to 'stay positive' or 'don't think about it', but i wish there was also more space to say this really sucks and actually it could be really bad. i don't really feel like things are normal so i feel weird that there's this pressure to act normal. emotionally it's all up and down and i wanted to reach out to people who would hopefully understand my perspective.

thank you <3

  • Hi Freya97 and a big welcome to our forum, 

    I am sorry to hear you have recently been diagnosed with T-Cell Lymphoma and it must be a bit of a shock for you and not feel quite real and with it being a rare type of lymphoma I can imagine you have so many questions racing through your head and few answers at the moment. To help you navigate the uncertainties linked to a recent diagnosis, I thought I would share with you our information on Non-Hodgkin Lymphoma and you will find on there the different kinds of T Cell Lymphomas. 

    Best of luck going through all that testing and it must be so hard to have to wait to find out whether it's the easily treatable variant and I am keeping everything crossed for you that it will be the better one. I hope that you won't have to wait too long for these results and it's normal while you are going through this wait to feel a bit restless and also in shock and distracted. It must be hard for you to focus at the moment on anything else and it might be useful for you to have a look at our helpful tips on how to cope while waiting for important news

    Having amazing support around you will certainly help and you are welcome on our forum too at any time to simply offload. You will never have to be forced on here to be positive and if you want to express your frustration or anything you can just do it here and sometimes it helps to open up about how you are truly feeling and you can do it on our forum knowing that there are others who are in the same boat or who have been there before and come out the other side of treatment. 

    I've had a little look around the forum to try and find other members of our community who have had a T-Cell Lymphoma diagnosis so that you can connect with others who can truly see things from your perspective having themselves been in your place before. First of all, I will mention  's thread 'Diagnosed with Sionasal NK T Cell Lymphoma' - I am not sure if it is exactly the same type as yours but it might be interesting for you two to connect and share experiences.  also posted a couple of months ago this thread about being diagnosed with angioimmunoblastic T-Cell Lymphoma. Feel free to respond to them if you would like to do so and I hope that you will be chatting on here soon with others who understand all the implications of a T-Cell Lymphoma diagnosis. 

    If at any point you feel it might help to talk things through with someone, you are also very welcome to speak with one of our nurses. They are available on this free helpline 0808 800 4040, Monday to Friday, 9am to 5pm  and would be happy to listen and offer support - the helpline is closed this bank holiday Monday though and will reopen at 9am on Tuesday 5th May. 

    Keep us updated on what you find out when you get your results - we'll be thinking of you and sending you positive waves your way! 

    Best wishes, 

    Lucie, Cancer Chat Moderator