Angioimmunoblastic T-cell Lymphoma - does anyone out there have any experience with this rare blood cancer? It seems a lonely place!

Hi.  I was diagnosed with Angioimmunoblastic T-cell Lymphoma in September 2025, starting with lumps suddenly all over my skin first appearing in June 2025.  Diagnosed at Stage 4 with this relatively  rare blood cancer with around only 140 cases in the UK each year

 I completed six chemo cycles in February 2026 and now await  PET-CT scan at the end of March.  

 Have visited a few online forums and there is very little mention of AITL and any posts are from years back.  Is anyone out there with experience of this? It seems a lonely place!