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Basal Cell Carcinoma with infiltrative growth pattern - Waiting for a decision to be made about MOHs surgery but I might not hear anything for 2 months

Jilty2
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I have after 6 months been diagnosed with BCC with infiltrative growth pattern, I have no idea if this is very serious I am waiting for a decision from a multi disciplinary team at another hospital if they will perform Moh's surgery. I've been told I should hear within the next 8 weeks. Can anyone offer some advice/ information please its been a very stressful process and a bit of a fight tbh. Thanks

  • Hello Jilty2

    I'm sorry to hear that you've recently been diagnosed with a basal cell carcinoma. It's understandable that you've found this a stressful time and that you may be feeling worried about the time you've had to wait to get to this point, and for the MDT to discuss appropriate treatment options. 

    BCC is the most common type of skin cancer and it's very rare for it to spread to another part of the body to form a secondary cancer. Hopefully this information will give you some reassurance whilst you're waiting for news. 

    In the meantime, I wonder if you might find it useful to talk with one of our nurses. I know they will be happy to listen and offer any advice, information and support they can. If you'd like to talk with them, they're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Hopefully you will hear from the specialists soon. Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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    Hi Jilty,

    Sorry you find yourself here but welcome to the forum. What exactly is your concern at this point? Is it the delay while the MDT meets, or something about Mohs surgery?

    I also have a bcc (just under my eyebrow) that according to a December biopsy is partially nodular and partially infiltrative. I am scheduled for Mohs surgery on the NHS but have been given a date in July. Two weeks ago I paid to see the NHS hospital’s head of periocular bcc surgery privately, to ask if it was safe to put this off another five months.
    He said he thought it was safe - that the rate of probable growth was not enough to justify me paying ££££ to go private to get it done more quickly. I asked him about the fact my bcc was classed as part infiltrative and he said that did not change his analysis. 


  • Offline in reply to Dawntreader

    Hi Dawntreader

    Thank you for your reply I'm sorry to hear you have a similar problem. I was referred by my local hospital to a hospital that can perform the procedure so I saw the mohs consultant last week and she offered radiotherapy or surgery, I have opted for surgery so now just waiting to hear from them, she said the nurse would call me 2 weeks before they were going to operate with the details so just waiting now which is fine! Its really encouraging to hear that you have been advised to hang on for the NHS procedure. I'm happy to wait I trust that if they thought it needed removing immediately they would do it. I have to go back to my original hospital next week as I have a lesion on my forehead hopefully its something and nothing!

    Keep me posted how you get on and again thank you for reaching out and for the info.

    JIlty2

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