Hello there C171, sorry my replies all muddled! Would love to keep in touch for mutual support, it is apparently a rare cancer so not much in the way of support out there. Hope you get a treatment plan soon. I imagined it travelling all around my lymphatic system - so many strange aches and pains, terrifying ! But the doctor said slow growing try not to panic. Time will tell I guess! X x 

Hello there C171, sorry my replies all muddled! Would love to keep in touch for mutual support, it is apparently a rare cancer so not much in the way of support out there. Hope you get a treatment plan soon. I imagined it travelling all around my lymphatic system - so many strange aches and pains, terrifying ! But the doctor said slow growing try not to panic. Time will tell I guess! X x 

I am exactly the same , so tired too and imagining the worse with every ache and pain too . I am still waiting for a date and praying it comes soon !! 

All the best. Keep chasing and asking questions if you have the energy. I got a CAT scan brought forward by calling the booking team and asking for a cancellation. Will let you know how the start of my treatment goes this week. Take care x x

Thankyou thinking of you x