I had a surveillance colonoscopy july 3rd ago and afterwards was told a large suspicious lesion had been found, urgent biopsies sent and referred for urgent ct scan of chest abdomen and pelvis. july 15th. almost 5 week wait for results that I had to chase after receiving a call from x ray department to go for another scan relating to womb- I later learned that this was due to an incidental finding on CT but I had to find this our for myself after being so upset and called the consultants secretary and later phoned by a surgical registrar who told me that CT scan didn't show spread Following week I was Told biopsies showed HGD but no definitive cancer diagnosis and needed more biopsies as the MDT highly suspected the cancer was deeper into the colon. . Booked in for another colonoscopy but received no bowel prep - had to contact hospital day before and go collect it.
I had colonoscopy on Thursday and was very anxious - I have been a wreck since July 3rd not wanting to leave the house or interact with people. Towards the end of the procedure the consultant said to me that he had removed larger biopsies from the tumour to identify the type of cancer. As i had my back turned to him and looked around and said ' So I have cancer' and he replied yes you do and probably aggressive, we just have to see the type. I was floored.
Anytime i have had a colonoscopy the doctor has given me a A4 sheet with all the details of procedure on it and spoke with me. I was taken round to the recovery area and I was upset. the nurse asked if I was ok and asked what I had been told. I said I have been told i have cancer- she looked at her notes and said. 'That's right'. I asked when doctor was coming to talk to me as i had questions but the nurse informed me he had left for the day. I was numb.
I still have this large lesion and it is ulcerated - probably aggressive and almost 7 weeks since it was found. So i don't know if by this time has the cancer spread.
yesterday I was so upset I went to my GP who was able to print me off the copy of the report I should have received before i left hospital after colonoscopy on Thursday. Report confirmed cancer of a 25mm ulcerative centrally depressed lesion. At the bottom it said needs consultation by senior surgeon.
Can anyone tell me is the the normal way of being dealt with.