My diagnosis of a Bosniak 4 cyst in my left kidney came by letter! This was after two different CT scans following referral for investigation of frequent UTIs with evidence of blood in my urine. That in itself was a shock but further upset was caused by a second letter indicating a telephone consultation booked for 5 weeks later. This has been a very difficult time feeling like a void of information and potential outcomes. I have read copious materials about treatments of this condition and the majority indicate surgical removal of part or whole kidney. However there seems to be a growing school of thought that active surveillance in the case of a small cyst is the preferred option in the first place. I have been left with a huge number of unanswered concerns and no focal point for having these questions answered. Has anyone else experienced a similar situation and how did the treatment or active surveillance proceed?