Worried about chemo side effects and possible hair loss. Can someone help me through this?

Hi

I have now reached the chemo stage after my mastectomy.

I am due to start 16 weeks of  chemo every two weeks  very soon.

I am very anxious and upset about hair loss and the brutal side effects they tell you about!

Can anyone who has been through this help me please 

Parents
  • Hi Fluff, your post really resonated with me. Im five years on from my treatments...chemotherapy 8rounds,radiotherapy 15 rounds. I truly understand how your feeling ,I was petrified of having chemotherapy, my son was having chemotherapy, and he said mum  you have to have it ( I didn't think I'd could do it, the thoughts of losing my hair  and how my body would react to the chemotherapy  terrified me ,id told my son and daughter I dont think I can do it) so I out my big girls pants on ,and told my oncologist id have the chemotherapy and radiotherapy.  

    The first chemo I sat there like a deer in the headlights of a car,I didn't know what to expect,I really was petrified.  I was given anti sickness pills before chemotherapy.  I can honestly say the first chemotherapy session i had,was nothing like id built it up to be in my head, it didn't hurt  I didn't  feel sick and that was such a relief.  I did start to lose my hair after the second chemotherapy session, and yes it was distressing ,but I took charge and shaved it all off with hair clippers,yes I cried,but they were happy tears that id took control,I was getting treatments ,which was kicking my breast cancer to where the sun doesn't shine,and it felt good.  Yes as chemotherapy progressed, I did get tired,but I was never sick once,and still had a good appetite. I did have great care  and comoassion from the staff in my chemotherapy unit at the hospital . Radiotherapy wasn't as bad as id built it up to be in my head  either,yes it makes you tired  but its nothing you can't handle,its kicking cancer, and your hair does grow back once chemotherapy finishes . As I said I was petrified ,but I've come through it,I did it ,I bought three wigs  one a bob, and two other longer ones one was a real hair wig  very expensive,but I preferred the other two to be honest, I went to a wig specialist shop ,and the wigs were amazing ,didn't look like wigs when worn. It was a hot summer, so I didn't wear them indoors  I used turbans chemo head scarfs,which I bought on line.  I bought my wigs before I started chemo, so they were there whrn I lost my hair. You've got this,but if you ever need to chat, just send me a message on here . Good luck with it all, im sure you will be OK, your treatments are your way to recovery  just keep that in mind ,staying positive  really helps you get through it all . 

  • Thank you for your words of support. I plan to get a wig too so I can wear it as soon as I loose my hair. I know I have got to do this but the thought distress me.I will buy some turbans too. I have 8 round as well then radiotherapy. I hope my side effects arn't too severe. At the moment cancer is consuming me.Maybe I will be better once I get in to treatment Did you loose your eye brows and lashes?

    Thanks again

Reply
  • Thank you for your words of support. I plan to get a wig too so I can wear it as soon as I loose my hair. I know I have got to do this but the thought distress me.I will buy some turbans too. I have 8 round as well then radiotherapy. I hope my side effects arn't too severe. At the moment cancer is consuming me.Maybe I will be better once I get in to treatment Did you loose your eye brows and lashes?

    Thanks again

Children
  • Hi  Fluff 1

    Yes when you first get the news its a lot to take in,and hard to deal with. Once you start your treatments, the fear of the unknown  subsides  you  will still have.a few wobbles ( tears ) along the way I know i did because at first its like you arevin a dream,its hard to accept  what you're going through,but don't beat yourself up on the days your feeling low,your.only human and its natural/normal to feel this way,you just have to be kind to yourself, and to your body. Just do what you can what you'd normally do on a daily basses  and if you find your energy is low one day more than another,then just chill out  watch tv,film,or read a good book listen to music or do whatever makes you feel relaxed. I used to tell myself this...I'm really lucky I found my lump ,yes it seems like a long hard slog, that I've got to go through,andbyes some days may be harder as treatments progress  but each day that comes and goes  its killing the cancer,each day I'm getting closer to the finish line  I'm getting closer to getting the news the cancer has gone im getting closer to my hair growing again,to losing the chemo curls  ,and that in its self is fantastic. I think telling myself this every dsy,even on my worst days of feeling sorry for myself,gave me the strengh and determination to kick cancer where the sun dont shine,and knowing my treatments were doing exactly that.,made me smile. Yes I did lose my.eyebrows and some of my eyelashes  not all of my eyelashes.  But I met a lady in my chemotherapy unit who had gone before her treatments to have her eyebrows  done tattooed on,and they did look.good. id never thought about doing that  as I waa scared incase it hurt,or worse still I'd end up with slugs for eyebrows. I just used to use an eyebrow pencil and pencil them in ,and used an eyeliner along the edge of my eyes ,where id list some of my eyelashes.  But now I'm using for my eyebrows as there still very thin from years of overpluckinhg. Maybeline eyebrow tattoo.  Its quite good,you can paint it on before going to bed and in the morning peel it off. It does look dark untill you wash your face.it lasts around a week if you do it overnight, if you leave it on for 2hrs it doesnt last that ling maybe two/three dsys .So if you  haven't tried it ,it may be an option for you. Its not that expensive its £12.99 in boots,but on amazon its sometimes a lot cheaper . Aa I said even though its hard to do,just stay positive,and hold onto  thoughts of your treatments,although tough on you at times,ate actually killing off those vile cancer cells,im such a Woo if i can get through it whi h I have  ,you csn too,and will .x

    1. Oh thank you so much. I will try and stay positive and think that thought this is kicking this cancer in to touch! I will try the eyebrow liner but I am not very good at it!! I wish I have thought about tattoo eyebrows earlier
    2. Thank you xx
  • Im not very good at doing my eyebrows either lol but it turned out better than I thought it would .I was a bit afraid of how it would look  so I applied it  thinner the first time I ever used it I applied it with a mirror that had a magnifying side on it and that really helped too. The second time I did it ,I did it slightly thicket than the first time I did it. And it did look better. I dont like the thick slug tube of eyebrows that some lady's are rocking up with, I prefer mine thinner but each to thier own,do what makes you feel good about yourself . Yes do hold onto that positive thought,and tell yourself it every single day it really does help keep things into perspective. X

  • Ok I will do that. I don't  like slug eyebrows either  I'm trying to prepare myself for all! 

    I am really hoping my intro to the chemo suite reassures me a bit. I will like a rabbit  in the headlights too. I am really hoping it doesnt make me more anxious!

    Thanks for helping.me I do appreciate it x

  • Glad that i can help. I remember when I first went into my introduction to the chemotherapy unit,im guessing you will probably have simular thoughts to mine. Its a bit daunting  at first to see so many people having treatments in the unit,but at the same time it kinda measures you of just how well looked after and the care you will be receiving. Its not a place no one ever really wants to go too but its a place where you will find so much love and care in that room. The one piece of great advice I had given to me when I went in there to recieve my chemotherapy from one of the lovely staff called lemon was ...don't ever compare your self with anyone who is having chemotherapy  your body is unique  you and your body will not have the same side effects of anyone else,your chemotherapy will be tailored to you,so what some people have as a side effect,you may or maynot actually get,even if thier having the same chemo as you, your body may not have the same reactions ,so never listen to what other chemotherapy patients are saying about the experiences they may be having or going through . Take each day at a time,be kind to yourself by not being scared about something someone says about thier side effects  don't worry yourself unnecessarily as you may not even experience the same side effects ...remember this,as it really is true. And hold onto all the positive thoughts everyday. The chemotherapy unit although daunting to see ,is a great place for people with cancer  its the best place really  because its got rid of many different kinds of cancer ,and saved soooo many people's lives. This thought I kept popping into my head,ecspeacialy when your first shown round,keep that thought in yoir head ,it really helped me put it into perspective.  Also I had to have a pic line put in,so my chemotherapy could be administered easily. I had always been told that I had good veins,so I was completely surprised on my first introduction to the chemotherapy unit,that the senior nurse told me when she looked at my veins ,that they didn't look good enough to with stand having chemotherapy with out having a pic line inserted.  So had to book an appointment for thst to be done, but couldn't get appointment befote my first chemo  so that was done through a candulsr. But got pickine put in for my second chemotherapy.  The pic line ,if you do have to have one, doesn't hurt when inserted ,but I was scared lol. The pic line has to be washed out evety week,at the hospital,which was a but if a pain  but just one of those things lol. Anyway not everyone needs to have them, and you may be one of those that doesn't, but if you do ,it doesn't hurt when they do it as they numb you,  Do let me know how things go .I'm sure you will surprise yourself with how you cope,its never as bad as we make it to be in our head.x

  • Thank you for your great reply. I will keep all you are saying in .my.mind. I am ok with needles etc so canula PICC line ok ok by meI will let you know how I get on

    Thank you.again

    Jan xx

  • Your Welcome Jan,my name is Jasmin,hence my user name jassoscared .yes do let me know how you get on . X

  • Hi there I have been to the chemo suite it was so busy. Can't say it was reassuring! I have appointment for pic line too. First session next week and I am very anxious! X