Bone cancer after breast cancer

Hi 

I've been told i may have cancer in my sternum and spine after waiting 6 months for a CT scan that was referred for by my breast cancer consultant. I'm angry the test took 6 months to happen then waited 4 weeks for result. Another 2 weeks to see oncologist. More waiting for MRI scan. I had breast cancer in 2019 which was also in my lymph nodes. Should my wait of been so long x 

Parents
  • Hi Tracyandjo.  I am so sorry to hear that you had to wait so long for scan and results.  I am not shocked though as the NHS wheels seem to take a long time to get into motion.  I had breast cancer in 2012.  Last year went to doctor with hip and back pain sent for X Ray.  Nobody came back to me at all for the results.  I saw on NHS app it showed to lesions in pelvis, phoned doctor he said nothing to worry about.  Went for physio she sent me for MRI.  Turns out it is secondary breast cancer which is incurable.  I only started treatment in December last year which is 10 months after visit to doctor.  It is now in pelvis, spine, ribs skull etc.  I keep thinking if they had acted quicker it would not have spread so much.  So I do understand the anxiety, worry and frustration of all the waiting.  Have you seen the oncologist and had MRI yet?  

Reply
  • Hi Tracyandjo.  I am so sorry to hear that you had to wait so long for scan and results.  I am not shocked though as the NHS wheels seem to take a long time to get into motion.  I had breast cancer in 2012.  Last year went to doctor with hip and back pain sent for X Ray.  Nobody came back to me at all for the results.  I saw on NHS app it showed to lesions in pelvis, phoned doctor he said nothing to worry about.  Went for physio she sent me for MRI.  Turns out it is secondary breast cancer which is incurable.  I only started treatment in December last year which is 10 months after visit to doctor.  It is now in pelvis, spine, ribs skull etc.  I keep thinking if they had acted quicker it would not have spread so much.  So I do understand the anxiety, worry and frustration of all the waiting.  Have you seen the oncologist and had MRI yet?  

Children
  • Hi 

    I have an Mri booked for Monday then oncologist again on 23rd. More waiting which is the hardest part. I hope your treatment is going well. X 

  • Hello

    I am sorry to hear what you are going through. I  am still receiving Kadcyla for breast cancer and have the 10th of 14 on Wednesday. For the best three weeks I have been experiencing a dull ache on the right hand side lower/middle back like a muscle strain and a pain in my right side. Spoke to oncologist yesterday who said nothing to worry about but he wants to arrange a CT scan. My stools have been almost black for two weeks. 

    II of course am extremely worried as dull ache does not go away with painkillers.

    Best wishes with your treatment.