Mum's been diagnosed with inflammatory breast cancer that's spread to her bones. Has anyone else had this diagnosis?

My 84 year old mum has been diagnosed with inflammatory breast cancer that has sadly spread to her bones. I was just wondering if there was anyone out there who has been diagnosed with the same and if you have any information about your situation that may help - even if the information is good or bad. Thanks

Parents
  • Hi Lytham 45, 

    Im sorry your mum is going through this. My situation is different as although I was diagnosed with inflammatory breast cancer I was 41 at the time and at stage 3. I can tell you the typical treatment for this would be chemo, followed by modified radical mastectomy and then radiation. Treatment is also dependent on receptor status. With it being diagnosed stage 4 from the outset the treatment path may be different for your mum. Her current health will also affect treatment e.g. I had to get heart scans before some of my treatment.

    There are specific Facebook groups such as the inflammatory breast cancer detour that have members whose diagnosis will be the same as your mum's. I hope they can help with some of your questions. I'm happy to answer anything I can here. 

    Being newly diagnosed is scary. If you have already googled and panicked please remember that this will be outdated information.  If you haven't googled already please don't, it's hard to resist but it doesn't help.

    Wishing you and your mum all the best. 

    Margaret 

Reply
  • Hi Lytham 45, 

    Im sorry your mum is going through this. My situation is different as although I was diagnosed with inflammatory breast cancer I was 41 at the time and at stage 3. I can tell you the typical treatment for this would be chemo, followed by modified radical mastectomy and then radiation. Treatment is also dependent on receptor status. With it being diagnosed stage 4 from the outset the treatment path may be different for your mum. Her current health will also affect treatment e.g. I had to get heart scans before some of my treatment.

    There are specific Facebook groups such as the inflammatory breast cancer detour that have members whose diagnosis will be the same as your mum's. I hope they can help with some of your questions. I'm happy to answer anything I can here. 

    Being newly diagnosed is scary. If you have already googled and panicked please remember that this will be outdated information.  If you haven't googled already please don't, it's hard to resist but it doesn't help.

    Wishing you and your mum all the best. 

    Margaret 

Children
No Data