NSCLC - Stage 1 - Lobectomy

Hi everyone,

Yesterday was the day. Went in and got the results - very chaotic, train cancelled, found a cab, got to the hospital only 10 mins late after having phoned ahead. No dr. Saw a junior man, very uncomfortable with giving the bad news.

Biopsy results = cancer confirmed. Not a candidate for immunotherapy. They can only offer me surgery. I’m still reeling from the shock of the announcement. Somehow right up to the last minute I thought I was going to be ok.

Losing 25% of your lung capacity while still under 60 is a scary thing. Can anyone weigh in after a lobectomy and let me know how they are doing? Did any of you decline surgery, and choose radiotherapy instead?

#Fearful

Parents
  • I had a lobectomy Tuesday.  Got out of hospital yesterday.  No shortness of breath. It isn't as bad as I thought. I'm 70 years old. I'm sore, but they are good with painkillers.  The hardest part is sleeping. I had top right lobe removed.  It feels good knowing the cancer is out. I think you will be fine. I was terrified. Hope this helps.  Good luck. 

  • Thanks Christine,

    If you could do it, so can I. I’m just scared and sad about all the things I might not be able to do afterwards (I’m very active doing gardening, DIY, chopping wood, etc). You sound braver than me though.

    I have a high pain threshold but this scares the bejeezus out of me to be honest.

    Regarding sleeping, are there any tricks? Like lying on the non-operated side with an extra pillow or something?

    Do you know what painkillers they give you in hospital/afterwards?

    Thanks for your reply, I don’t feel quite so alone …

  • I am going to try and sleep on the reclining chair tonight. Will let you know who it goes. I'm very active too. That will help ypu so much after the op. I had Morphine.  I am on Paracetamol and Codiene. It just tight around my right side. Can't do much for four to six weeks. I'm expecting to get back to the gym and do what I was doing.  You can do this. The cancer will be out too. 

Reply
  • I am going to try and sleep on the reclining chair tonight. Will let you know who it goes. I'm very active too. That will help ypu so much after the op. I had Morphine.  I am on Paracetamol and Codiene. It just tight around my right side. Can't do much for four to six weeks. I'm expecting to get back to the gym and do what I was doing.  You can do this. The cancer will be out too. 

Children
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