I am sorry to hear about your gallbladder cancer diagnosis. It must be a time when you have a lot of questions racing through your mind after getting this cancer diagnosis and there is information on our website on gallbladder cancer you might be interested in having a look at. If there is anything you want to discuss, our cancer nurses also have a helpline and you can get in touch with them on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm.
You have come to the right place though to talk to others who have had a similar diagnosis and I thought I would mention a few members who posted here recently who were also diagnosed with this cancer. For example Specialkay posted this thread a few months ago about their gallbladder cancer diagnosis - at the time they had had major surgery and were about to start adjuvant chemotherapy. Deborah999 also posted this thread about their stage 4 gallbladder cancer journey and was at the time also looking to talk to others who had had the same diagnosis so don't hesitate to drop them a line if you would like to connect. Those are just a couple of examples and I hope that you will hear from the experiences of others here who have been affected by gallbladder cancer.
Have you been given any indication as to what your treatment options might be at this stage? I hope that the treatment will go well for you and that you are given all the treatment information you need after your diagnosis.
Thank you for your reply Lucie. I had self admitted myself to A & E, in November 2024, with what I suspected to be a heart attack. However, my heart was fine but they weren't sure what was causing the problem. I had 2 CT scans which showed nothing. 4 days later my bloods showed that I had cholecystitis. My gb was removed, gb was bery pusy, but all was good, I got sent home. Return January 2025 for post op check. All good. On 1st April I got call to attend hospital and was told that the results from lab had come back saying I had a rare for of cancer. I was sent for a CT scan later that week and bloods where taken. I was told that the gb wall wasn't taken out at time of surgery as adhered to liver surgeon said he would refer me for further surgery to have it removed. CT results took a long time to come back got a call regarding this a week past Wednesday. Apparently as my gb had ruptured, I was not suitable for surgery, I would receive palliative chemo, however if that didn't work there would be nothing more they could do. Surgeon said he would ask for a 2nd opinion and at the moment I haven't heard the outcome or had any appointment from ab oncologist. I have however received a call from an oncology nurse, who has sent me a lot of literature regarding chemo. My CT hasn't shown there are any mets and the cancer is still contained. I was advised that it was adenocarcinoma. At the minute I'm still a bit in limbo. I keep thinking they have made some sort of mistake as I feel well and look well.. I jyst can't get my head around it.
Keep string that's all we can do it is a very rare cancer mine is mestotis but only in my lymph nodes not organs I have had 8 rounds of chemo what shrank it but now on iummetheraphy had 5 rounds they don't know if it has grown or just a swelling I've had another scan waiting to see oncologist next wk but I feel so well half of my gallbladder was left in let me know how u go on x
Keep string that's all we can do it is a very rare cancer mine is mestotis but only in my lymph nodes not organs I have had 8 rounds of chemo what shrank it but now on iummetheraphy had 5 rounds they don't know if it has grown or just a swelling I've had another scan waiting to see oncologist next wk but I feel so well half of my gallbladder was left in let me know how u go on x
Your gb sounds similar to mine, in that a part has been left behind. Mine hasn't gone anywhere else yet, but I'm worried all this hanging around is delaying things and it may start to spread. I was 6 months post op before they found out it was cancerous.
Hope all goes well at your appointment next week and you get further treatment soon. Take care, stay strong and I will you know how I gwt on. X
