Polycythaemia vera PV - what other symptoms did people have?

My husband has recently been diagnosed with PV.

It's unclear how long he's had this but I suspect a long time (10y) before diagnosis, based on what we now know are potential symptoms.

What other symptoms have others had with PV that aren't necessarily in the information packs. 

  • Hi JenX_61,

    Welcome to Cancer Chat. I'm sorry to hear of the situation with your husband - I hope you are getting on OK.

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  • Hi Jen_X61

    Sorry to hear about your husband having a diagnosis of PV.

    I was diagnosed at 48 years old and I am now 59. I think I only had the well known symptoms but found lots of information on two sites.

    MPNvoice.org.uk and Healthunlocked.com

    It is very useful to find a specialist MPN consultant or Professor if you can. There are lots of new very effective treatments that allow you to have a very near normal life.

    Keeping fit and active is important.

    Take care