Just been diagnosed with breast cancer for the 2nd time!!!

Hi, just needed to talk to like minded people and people who can advise and support. I am 40 and have just been diagnosed with breast cancer for the second time. Almost ten years ago to the day. 

My cancer is very hormone driven. Last time I had a lumpectomy, chemo and radio. I have also been on Tamoxifen for last ten years.

I am unsure yet if it is a reoccurrence, secondary or new. But it's the same type, and side. My Dr has said I can't have radio again and possibly no chemo?! I presumed chemo would have been a given.

I have to have a lot of genetic testing, a mastectomy and hormone treatment. Just had CT scan to see if it's anywhere else. 

Anybody else been in a similar situation or can offer some advice xc

Thanks 

Parents
  • Thank you all so much for replying, and apologies for the late reply.

    It has been a very hectic few weeks. From I got diagnosed to now which is about 3 weeks, I have had a double mastectomy which is tough but only option I had. I will reconstruction in a few months.

    I found out today that margins are clear and so we're my lymph nodes which is amazing. Awaiting to here about her2 tests to decide next steps.

    Last time I had everything and I'm struggling with idea of no radio or chemo as I feel it kills off any stray cells 

    I can't have radio again and unlikely to have chemo as I'm very strong hormone positive 

    They have said chemo won't hit them cells so hormone treatment of some type. I fear for another reoccurrence in ten years as I'm forty and have had it twice. But currently happy with what is happening xxx

Reply
  • Thank you all so much for replying, and apologies for the late reply.

    It has been a very hectic few weeks. From I got diagnosed to now which is about 3 weeks, I have had a double mastectomy which is tough but only option I had. I will reconstruction in a few months.

    I found out today that margins are clear and so we're my lymph nodes which is amazing. Awaiting to here about her2 tests to decide next steps.

    Last time I had everything and I'm struggling with idea of no radio or chemo as I feel it kills off any stray cells 

    I can't have radio again and unlikely to have chemo as I'm very strong hormone positive 

    They have said chemo won't hit them cells so hormone treatment of some type. I fear for another reoccurrence in ten years as I'm forty and have had it twice. But currently happy with what is happening xxx

Children
  • Hi Rehab,

    I had a double mastectomy second time around. I was advised to have radiotherapy first time,  but didn't, due to various procedural delays. I have only had hormone therapy for both bouts (Tamoxifen and Letrozole). After I had the double mastectomy, I was advised that everything had been removed, so there was no need for additional medication or treatment. Maybe you're in the same boat now? I suspect that you can still have immunotherapy, if you need it. Try not to panic and place your faith in your care team - they know what they are doing. I am delighted to hear that you have clear margins and no sign of any lymph node involvement. This is great news.

    Keep in touch.

    Jolamine xx

  • Thank you for the reply. Yea, it seems like tablets or injections moving forward. I've already done Tamoxifen so it won't be it. I suppose it's 9 years since my initial diagnosis and I don't want to be here again in another ten years!!

  • Hi Rehab,

    None of us want to see a recurrence, but sadly that's out with our control. The sad thing is that,` after 9 years you feel that you are learning to live with your diagnosis, then it comes back to bite you again. This tends to dent our confidence all over again. All we can do is to accept any treatment offered and hope - hope had got me a long way so far!

    Jolamine xx

  • Just keeping up to date with you all. So still no results yet from my ct on Monday 24th . I’m very disappointed about how long I’m waiting. I had been given a direct line to my breast care nurses which I had rang yesterday morning and never received any reply just an answer phone. I’m going into my two week time now since my diagnoses. To which I have just been left in limbo. I know no news is good news but at the moment I’m having a terrible time just accepting this has happened to me again. It’s like now as the days go on that actual day starts to feel more of a distance away I just forget that it all happened. And I know any day now I’m gonna get that call or letter to say I’ve to go to the unit and this will determine my outlook of what’s ahead. I’m just so scared x I wish you all a very speedy recovery from your treatments as well x.