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Just been diagnosed with breast cancer for the 2nd time!!!

Rehab2
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Hi, just needed to talk to like minded people and people who can advise and support. I am 40 and have just been diagnosed with breast cancer for the second time. Almost ten years ago to the day. 

My cancer is very hormone driven. Last time I had a lumpectomy, chemo and radio. I have also been on Tamoxifen for last ten years.

I am unsure yet if it is a reoccurrence, secondary or new. But it's the same type, and side. My Dr has said I can't have radio again and possibly no chemo?! I presumed chemo would have been a given.

I have to have a lot of genetic testing, a mastectomy and hormone treatment. Just had CT scan to see if it's anywhere else. 

Anybody else been in a similar situation or can offer some advice xc

Thanks 

Parents
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    Hi there I’m new to this group I was hoping Rehab 2 if you got a new information on your diagnoses. Everything you Hane deceive is exactly the same as me so far. Would appreciate help or advice too xx

  • Offline in reply to Mgtrophy

    Hi MgTrophy,

    A very warm welcome to our forum. Can you tell us a little about what type and stage of cancer you had  last time and how much you have discovered about this second bout so far? When were you first diagnosed and what treatment did you have? This would help us to give you some help and support. Waiting on results is always one of the most difficult parts of our cancer journey.

    Please keep in touch and remember that we are always here for you.

    Kind regards,

    Jolamine xx

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  • Offline in reply to Mgtrophy

    Hi MgTrophy,

    A very warm welcome to our forum. Can you tell us a little about what type and stage of cancer you had  last time and how much you have discovered about this second bout so far? When were you first diagnosed and what treatment did you have? This would help us to give you some help and support. Waiting on results is always one of the most difficult parts of our cancer journey.

    Please keep in touch and remember that we are always here for you.

    Kind regards,

    Jolamine xx

Children
  • Offline in reply to Jolamine

    Hi there. So last time was 12 years ago. I was 34 had IDCS thank god no involvement of lymph nodes a 19mm tumour and treatment consisted of lumpectomy with chemo and radio and senital nodes removed. 

    Fast foward and went for routine mammogram got a call back as calcifications were found on the right Breast same breast as before. They did another mammogram with scans and biopsy’s. Doing this they found some swelling on my nodes they performed biospys on my breast and node area. Was told to return in a hour. Was all the same as before. Same time same room same treatment room. Was reliving that first day all over again. When I returned they told me they have found a 10mm tumour very close to the same area as I had before and it displays cancer. They had to do more detail tests now as it’s the area of calcification linking into the 10mm tumour. I then had to get more biospys done under the arm a core biopsy I believe as this is the area they want to see what’s worrying. I’m going for ct today. I feel so sick with worry. Had to tell me 14 year old over the weekend was awful. She was 2 the last time. So I was able to protect her from all this, whereas now watching her cry was heartbreaking. I have three older children who are 28 24 and 21 and they remember the last time very well. Since this I have also had 3 grandchildren who are now 10 3 and 6 months. The fact that I need to not let them see me sick now changes everything as I’m their strong nanny. My heart is broken just why me. In this past 6 days I’ve cried held it together for others been brave cry again. I don’t want to leave the safety of my own house as this makes it as a reality. I was finishing work this month to travel had trips planned was about to come me time. Worked all my life  from 11 Was ready to enjoy it all now I feel it’s over. And what makes it worse is I went to New York last month and all my children went last minute. Hadn’t all been together on our own no grandkids no partners in over 20 years. And deep down all I keep thinking is was this all meant to be? Were we all meant to have this one last and only time together? My head and emotions are awful right now. 
  • Offline in reply to Mgtrophy

    Oh, poor you. As you'll remember from last time, you're at that awful stage of the unknown just now. Once you get all the answers, things will begin to settle down. I hope that your CT goes well today and that you won't have to wait too long for the results. Don't worry about all those tears. Crying is a good way to relieve some of the stress that you're under. I cried buckets while I was waiting for my results. I had lost my Mum to secondary breast cancer and was convinced that I would have the same fate. That was all 15 years ago now and I'm so thankful that I'm still to the fore.

    Your 14 year old is at a difficult age to take your diagnosis in. You will find that she'll take it better, if you can be as positive as you can about your treatment prospects. I am so glad to hear that you had that lovely trip to New Yok with all of your family and I hope that you'll get other opportunities in the future.

    I was just retiring when I was diagnosed too. All of my aspirations to travel and to do all the things that I never had time to do, when I was working had to be shelved. In the event, my hubby developed so many medical conditions, that we can no longer get insurance to travel abroad, so my plans were well and truly scuppered. Life is not the same as it was pre-cancer, but I've just had to accept my lot and to make the most of my "new life".  You are fortunate that your grandchildren are living nearby and are young enough to be unaware of your diagnosis. This first year is likely to be the most difficult for you, if you have to undergo further treatment and have the exhaustion that seems to accompany this. However, I'm sure that you'll find some spurts of energy to see them and to make some precious memories together. Fortunately, cancer does not preclude us from getting travel insurance, so you will get the opportunity to travel.

    Please keep in touch and let us know how your CT scan goes. We are always here for you.

    Kind regards,

    Jolamine xx

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