Hello all. My wife had her CT scan on Tuesday, but the report didn’t make it to submission in time for today’s review meeting. We will have another seven days to wait for the diagnosis and plan.

She’s doing ok, but can only have liquids as any pieces of food won’t go past.

The initial shock hit me the hardest, but after a week at work, I’m more settled and calmer now.

I’ve been very impressed with the NHS. They are an amazing team and although we have another week to wait, we understand that they are doing their very best with the resources they have.

I hope everyone has a nice weekend, and you all take care x

Alex

I really hope everything works out okay for your wife Alex - stay strong x

Alex prior to my husband being diagnosed (20 yrs ago) he couldn’t swallow anything of any bulk only soft food and even that was hard- he had the operation and apart from about 4 dilation ops over a couple of years ( due to scar tissue) he’s fine. He lost a lot of weight and has never really regained what he was. He was told to eat little and often ( he couldn’t get use to that so tends to stick to 3 meals a day but much smaller portions than he use to have). Do try and stay positive since his original diagnosis my husband has seen our children married and enjoyed 6 grandchildren- something we didn’t think would happen all those years ago.

Send all the best to you and your wife x

Hi Alex, yes the waiting isn't good but somehow the days go by. I'm glad you're feeling more settled- what else can you do?! I did the wrong thing when my son was diagnosed - I barely got out of bed for 4 days and ate 1 banana and a kitkat in that time. I couldn't stand the not knowing what it all meant and what might happen. We as a family got used to the tests, the waiting for results etc. I always felt awful that my son couldn't even enjoy food anymore. Although, even when they told us the tumour was blocking his oesophagus with just a tiny gap for liquids (which often also came back up as well) there were times when he did manage mash with primula cheese spread mixed in, and even potato and leek soup somehow. At the time it can feel like that's how they will be for good, but there is definitely light at the end of the tunnel (we are not even at the end of the tunnel yet as he has the other 4 FLOT to go) he is 4 weeks after the op now and recovering, eating more or less normally. So good luck for scan results.x