Hi I am having the same procedure on Wednesday I have found it doesn't matter what anybody says the fear is constantly with you ,I am the same ,I don't switch off at night neither.I think my fear is to find out what stage i am at.Hope you find something to help you .

Its all constant fear. I know its not happening to me, but my son, but its constant fear as to what theyre going to say. My son will be told the stage soon as well but hasn't got appointment through yet. Keep googling what I know so far about his tumour size and no spread etc to try and predict - it's driving me mad!

Hi, just hoping you are still doing well.x

Hello all, I have spent the last hour reading this entire thread. It has helped me a great deal.

my 49 year old wife has been struggling with swallowing for the past four months and had an endoscopy on Thursday.

The doctor found a mass just before the stomach. It was big and he struggled to get the camera past it. We have been told it’s likely to be 90% chance of cancer. Her CT scan is tomorrow and we wait the biopsy results.

I have been a complete mess for days with full breakdowns while trying to be normal when my 14 year old daughter is around. 

My fear is that she perhaps only has months to live, as I read that once swallowing difficulty presents, it normally means the cancer is well established. We were told that if it has spread to the Aorta area then operation is not possible. 
it’s been the worst weekend of my entire life. 

My wife, bless her has been very calm about it. She says she has had no other symptoms and her bloods and poo samples were all fine. 

she is now on a liquid diet and she is keeping it down which I am so happy about. She has gone from 60kg to 50kg in six months. She had never smoked or drunk more than a glass of wine now and then.

Having read through all of your journeys, I’m feeling a little more confident that I’m not about to lose the love of my life. 

So THANK YOU all again for giving me hope. It seems that this cancer can be battled with.

Alex.

Hi there. Yes I know how absolutely frightening it is to read online about oesophageal cancer. At the start of this when my son was diagnosed he was dead and buried in my head and I was looking into how to kill myself after he was gone. The consultant couldn't get the endoscope past his tumour so we thought that was it. Just try and go along with it all step by step. Hopefully your wife will have the chemo, surgery then chemo again and it will be gone.x 

Hi Alex

So glad you are finding our various posts helpful. 

It really is a shock when you first find out  ....my hubby has had treatment and it has been a roller coaster BUT there is help via CRUk and Macmillan helpline ...and lots of good information on their webpages including for supporting youngsters.

Dont be shy to ask ...no question to small 

Sending strength to your wife and you and your daughter

Kind wishes RB

Thank you Karen and RB xxx

Hi Boxbrain0,

A big thank you for starting this thread. My husband was diagnosed in mid February and I have been following this thread over the months. 
You are a few weeks ahead of him and it has helped me prepare him for what’s ahead 

He had his operation on 31st August, so almost four weeks ago. 
When he came home, all his wounds were infected, even chest drain sites . Some level of pain has been a constant companion.

His wounds are now clean and healing. He is able to reduce his pain meds. 

Just a couple of questions:

He seems to sleep most of the day, were you the same 

Is the low fibre diet a temporary measure? 

It’s good to hear you are now pain free and hopeful that it is mentioned somewhere on this thread of someone jogging 6 weeks after surgery. ( Husband is a runner 

Hi yes I can walk for miles and so much fitter than before the op. Just need muscle to build up but otherwise ok apart from having a voice that is a cross between Brian Adams and Kermit. 

Thats great - the fitness, not the voice! Though Brian Adams is husky so thats not bad....Kermit, not so good! Did you say they said your voice will go back to normal?  

Hello all. My wife had her CT scan on Tuesday, but the report didn’t make it to submission in time for today’s review meeting. We will have another seven days to wait for the diagnosis and plan.

She’s doing ok, but can only have liquids as any pieces of food won’t go past.

The initial shock hit me the hardest, but after a week at work, I’m more settled and calmer now.

I’ve been very impressed with the NHS. They are an amazing team and although we have another week to wait, we understand that they are doing their very best with the resources they have.

I hope everyone has a nice weekend, and you all take care x

Alex

I really hope everything works out okay for your wife Alex - stay strong x

I really hope everything works out okay for your wife Alex - stay strong x