Choosing not to have treatment

My partner has prostate cancer which has started to spread and he is saying he won't have radiotherapy because of the side effects. Does anyone have experience of radiotherapy and is it as bad as he feels it's going to be? 

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  • Hi AntTan, and welcome to the forum, I'm sorry to hear your partner has prostate cancer, and is worried about having radiotherapy. I have locally advanced prostate cancer and had aggressive radiotherapy for it April 2022, I had a high dose 76gy over 20 sessions, I was on hormone therapy, before, during and after radiotherapy as well, which can also cause side effects and it's not always clear which treatment is to blame, but the ones I believe were RT linked were loss of hair around the lower abdomen, dry skin, urinary bleeding "I had bladder neck involvement" so that area was targeted, loss of libido for a couple of months and an increase in fatigue. I know many guys get no, or very few side effects, or get mild side effects, they are nearly all treatable and gone in a few months after RT has finished. just before my RT, my cancer was in 5 organs and 8 lymph nodes, my last scan could only detect cancer in 1 lymph node.

    Eddie

  • Hi Eddie, thank you so much for your reply. It is really helpful to hear from someone who has been through this. I will let my partner know and hopefully, if it's OK with you, get him to message you himself. Thanks again. 

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