Breast cancer.

So, I've had the dreaded appointment and they have confirmed breast cancer. It is large, oestrogen negative, HER2 positive. Grade 3. I've been told that I'm heading towards full mastectomy of left breast with chaemo and other treatment to follow. Strangely was not shaken too much about that. What has rattled me was what then followed. They explained that due to the size and fast growing nature they will do a CT scan next week to check the rest of my body to see if it has spread to my other organs or spine or pelvis. This is what has scared me. The thought of breast cancer I had got my head around. Having it spread to other parts of my body and what that then means has really scared me. Onwards to the next appointment I suppose. 

  • Hi Esmeralda_Ana,

    I can understand that it's never easy waiting for information - I hope that it's not long to wait for your appointment and any results to follow. Hopefully once you know more about the next steps, it will help a little in terms of understanding what to expect.

    With my reply here it should give your post a little boost, so hopefully you'll get some more replies soon.

    We are always here for support on the forum whenever you may need it, and I hope that it can be helpful for you.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • How'd you get on? I'm waiting on CT too of my torso. The waits are horrendous. And then the having to go in for the results. I'd rather just receive a letter at home followed by appointment to discuss. Mines a lobular HR+ HER2-. 7cm. I was diagnosed over 1 month ago and still awaiting tests and results and more tests. I just want to get full mastectomy done. Then they want a psych consult. Hope you're staying positive. There is so much more they can do for many cancers now. xx

  • I got on ok. completely forgot that they told me not to eat or drink anything other than water in the morning so I had to wait around in the waiting area for a few hours but they still saw me the same day which was a relief. CT scan was weird, I had a contrast CT where they inject this dye stuff in and then take the images. made me feel like I was wetting myself! I didnt though which I was majorly relieved about. 

    Ive got grade 3 Invasive Ductal Carcinoma, oestrogen negative, HER 2 positive.

    Totally agree, the waiting is THE WORST. Id much rather a letter and then a follow up appointment. Im waiting for them to call me back in to talk dates for the surgery. Feels like time has gone wild, superslow but sped up at the same time. 

  • Hi I have been diagnosed the exactly the same are yours. Tomorrow is my surgery xx

  • Offline in reply to VDV

    Hi VDV,

    A very warm welcome to our forum.

    I am sorry to hear of your diagnosis and just want to wish you all the best for your surgery. I had a lumpectomy first time around and a double mastectomy for the second bout, which appeared less than a year after my first surgery. That was all 14 years ago now and I still lead a busy and fulfilling life. Hopefully, you will too.
    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Ah VDV, can I ask how quickly you went from the diagnosis appointment to surgery appointment beinv arranged? I was told the diagnosis on Thursday last week, it's Wednesday morning now. I hope your surgery goes well, I'm sure it will. Can I ask what you are having? I'm on for full left mastectomy.  I'm getting nervous something else has shown up in the CT scan.

    Do let me know how it goes xx

  • Hi Jolamine. What a burst of hope! The more people I chat to about breast cancer the more I'm hopeful, im surprised how many people have been through it and are out the other side successfully.  It's helping me calm the panic side of my thoughts. 

  • I was diagnosed on the 11th September and still waiting on treatment plan. They're thinking surgery on the 19th November. They have to do biopsies of another lump on the other side and a lymph node first to figure out treatment plan. Every appointment makes me nervous for the worst news. 

    I also know so many women that have been through it and completely fine on the other side now. Even stage 3 large aggressive tumours. I think my surgery as slow as its grade 2. But still so worried about it spreading. 

    Maybe we can request letters instead of appointments? I'll ask next time. I called last Sunday and said I want double mastectomy and no more biopsies as I want them both off and they called me in for an appointment with in two days. 

    Give them a call if you want to get more answers. They definitely don't tell us everything either. I only just found it its in my nipple too. But thats better than the muscle at the back. 

    Let us know how you're getting on. My next appointment is biopsies tomorrow now. 

    Stay strong everyone. xxx

  • Hi Esmeralda,

    My surgery yesterday was successful is lumpectomy's and axilla removal as my cancer spread into my lympnode. But thanks God is early detection not metastasis to my body. 

    my treatment plan is chemotherapy and radiation once my surgery is healing. 

    I am waiting genetic testing results praying negative if is positive I will need to another surgery bilateral mastectomy's as my surgeon explained to me.

    it takes me 3 weeks multiple biopsies,CT scan of my body to check it didn’t metastasis, MRI, mammogram, scans etc before to confirm my surgeries and procedures, plans of treatment. 

    my breast cancer is grade 3. Ductal invasive one of the most aggressive cancers. 

    I am taking day at at time is though mentally devastating, physically devastating my life turned up side down the day  I have been diagnosed with breast cancer. The only hope I have is my surgeon’s say is Curable early detection,

    think we have to be brave and don’t lose hope we will be cancer free again.

  • Offline in reply to Jolamine

    Hi jolamine,

    my surgery yesterday is successful. Xx