Hello Cbrccc

I'm sorry to hear about the recent news about your diagnosis. Undoubtedly it will have been not easy to hear this and it's understandable that you have questions and concerns about the next steps. 

It's possible that at the time of your diagnosis, the cancer hadn't metastasised or that it was so very small that it wouldn't have been detected by the scans. But it's impossible for us to say if this was the case or if there was some error in your initial diagnosis. 

I'm going to tag in eddiel to my reply to you here. Eddie has been living with metastatic prostate cancer for a little over two years now. You can read more about his journey by clicking on his profile but I'm sure he will pop along to share his experiences with you. There are a number of other gents posting on the forum who also have a stage 4 diagnosis and hopefully some of them will reply to your post as well but you can also use the forum search function to look for posts where prostate cancer is mentioned. 

If it would help to talk things through with one of our nurses and you're outside the UK then I'd suggest posting in the Ask the Nurses topic area or you can contact them by email using the link at the bottom of this page. I know they will be happy to offer any advice and support they can. 

Whatever decision you make about treatment Cbrccc, I wish you well for the future and hope that you'll be getting in 18 holes on a regular basis for a good while to come yet. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hello Cbrccc

I'm sorry to hear about the recent news about your diagnosis. Undoubtedly it will have been not easy to hear this and it's understandable that you have questions and concerns about the next steps. 

It's possible that at the time of your diagnosis, the cancer hadn't metastasised or that it was so very small that it wouldn't have been detected by the scans. But it's impossible for us to say if this was the case or if there was some error in your initial diagnosis. 

I'm going to tag in eddiel to my reply to you here. Eddie has been living with metastatic prostate cancer for a little over two years now. You can read more about his journey by clicking on his profile but I'm sure he will pop along to share his experiences with you. There are a number of other gents posting on the forum who also have a stage 4 diagnosis and hopefully some of them will reply to your post as well but you can also use the forum search function to look for posts where prostate cancer is mentioned. 

If it would help to talk things through with one of our nurses and you're outside the UK then I'd suggest posting in the Ask the Nurses topic area or you can contact them by email using the link at the bottom of this page. I know they will be happy to offer any advice and support they can. 

Whatever decision you make about treatment Cbrccc, I wish you well for the future and hope that you'll be getting in 18 holes on a regular basis for a good while to come yet. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hi Jenn , thank you for your reply  , I recieved a messsage from Eddie and is info explains what could have happened so I am feeling more comfortable with it all 

do I am about to reply to him perhaps u will see what conclusions I have come to 

thank you so much for your support much appreciated .