Colorectal cancer with possible liver mets

Hi,  I have just received a confirmed diagnosis of a colorectal cancer after having a colonoscopy  3 weeks ago and a CT scan a fortnight ago. I had no symptoms, this has all happened following my first routine bowel screening because I recently turned 50!

i had a previous colonoscopy 2 years ago which was clear so each step of my journey so far I’ve gone in to naively assuming all would be well.

However, it’s the gift that just keeps giving and I met with the colorectal surgeon today who told me the CT scan had revealed areas of concern on both lobes of my liver that are more than likely mets from the colorectal tumour. I already had an MRI scheduled for next week but will now have another on my liver and also a PET scan. So many ‘what ifs’ and I just need a plan.

I can’t believe all this is going on inside my body and I was feeling ok. I am trying my hardest to keep looking at the positives (Thank God for the bowel screening) but it’s getting difficult as I share the news with the people I love  and watch their worlds change forever (I have 4 kids and we told them tonight). I am scared but what I want most of all is for my kids to be ok. 

I’ve reached out to connect with a few of you who seem to have gone through / are going through similar to me, I hope that’s ok  xx

Parents
  • Hi there, I was diagnosed almost 5 weeks ago and I still cant take it all in. I have bowel cancer at the sigmoid and a tiny spot on my liver that has metastasised from the bowel. I was seen by the oncologist last week and have to start chemotherapy on December 4th for 3 months. It all very terrifying when they are giving you all the possible side affects that you may get. Once I have had the chemotherapy they will rescan me and then I will need two surgeries. One to remove the bowel tumour and I need to go to Edinburgh for the liver surgery. I am glad to have found this forum with people who are going through the same thing as me. 

  • Hi, you look to have a similar treatment plan to me. I will be doing my 3rd round of chemo the day after you have your first. Are you at the Beatson?

    We all have similar cancers and there is no way for us to know why some of us have a certain treatment plan and others have a different one but the specialists really do know what they are doing and in all our cases I hope and pray we have the best of outcomes. It is scary and so hard to believe it is actually happening to you. My main side effects from week 1 were also nausea and tiredness, and just a general feeling of not being quite with it but by the following week I felt like my old self again but you do get paranoid about the more serious stuff. I do lots of deep breathing if I feel all the thoughts in my head are getting too much and try to just concentrate on the here and now so all I am thinking about just now is the chemo, I will think about the next scan and the operation later. Please feel free to private message me. Clare

  • Hi Claire, thanks for your reply it’s really lovely to hear from you and what I can expect the treatment to be like. I was only at the Beatson Last Wednesday for a PET scan. I’m being treated at Wishaw but my chemotherapy will start at Beatson Monklands hospital and then I can go home for the infusion to finish over 48 hours. My surgeon is excellent  and as are the colorectal nurses. 
    Annemarie.

Reply
  • Hi Claire, thanks for your reply it’s really lovely to hear from you and what I can expect the treatment to be like. I was only at the Beatson Last Wednesday for a PET scan. I’m being treated at Wishaw but my chemotherapy will start at Beatson Monklands hospital and then I can go home for the infusion to finish over 48 hours. My surgeon is excellent  and as are the colorectal nurses. 
    Annemarie.

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