Recently diagnosed with prostate cancer

Hi My name is Sean. Im 63 and have been diagnosed with prostate cancer. My gleason is 3+4 My T stage is T2. I had a PSA of 8.4. As i was only diagnosed 1 week ago still waiting for paper work from hospital. The urologist told me that active surveillance is the best way to go as its in its early stage. I personally feel that i cant go down this route through a fear it could just get out of control. I keep thinking that surgery to get it out is the best route for me. Obviously side effects. Its not easy dealing with something you just cant see. Still in absolute shock. I am married with a very supportive wife and family members. Just wondered what treatments other members are taking. I know i need a bit more time to think properly but just to be told i have cancer is hard to take in.

Thanks

Sean

Parents
  • Hi Sean, I'm Dan. I'm 67, diagnosed 2 months ago.  The scores on my doors are very similar to yours but my PSA has never gone above 1.5, I was only sent for investigation after seeing a GP for backache. Like Sherlock22b, I've decided against the surgery route due to the potential side effects. I'm 6 weeks into HT and will be starting RT shortly. I'm finding the psychological side of things hardest to deal with at the moment. Most of the time I'm in denial, then I can flip into self-pity. But we are where we are, so we have to deal with it. My wife has been through both bowel and breast cancer over the last 15 years, so if she can do it then I'm damn sure I can. I've read everything I can find (top tip, stay well away from Google), statistically our chances are extremely good so we owe it to ourselves and the people we love to be strong and get through this. Happy to chat anytime you like.

    Best wishes, 

    Dan

  • Hi Dan Let me know how your HT and RT are going on. As of yet i just cant make my mind up. Your wife has been through 2 cancers i do wish her well. She is one strong lady. We can all get through this. If your psa is 1.5 are you at T1 stage. Would the active surveillance have been an option for you to take. I personally cant do active surveillance id rather have the operation or RT therapy. I will be going to a group chat session every month here in stockport with other guys with prostate cancer. As you said google i dont read any of that stuff. I just read from macmillan or cancer research.

    Wish you and your family all the very best

    Sean

Reply
  • Hi Dan Let me know how your HT and RT are going on. As of yet i just cant make my mind up. Your wife has been through 2 cancers i do wish her well. She is one strong lady. We can all get through this. If your psa is 1.5 are you at T1 stage. Would the active surveillance have been an option for you to take. I personally cant do active surveillance id rather have the operation or RT therapy. I will be going to a group chat session every month here in stockport with other guys with prostate cancer. As you said google i dont read any of that stuff. I just read from macmillan or cancer research.

    Wish you and your family all the very best

    Sean

Children
  • Hi All 

    I was diagnosed with prostate cancer last year but was lucky as it was caught early - The MRI only shows a small amount of disease and PSA was about 7 (but fluctuates) . It's  gleason  7 (3+4) so I went for surveillance although was offered surgery or radiotherapy (my gland was too big for brachytherapy)

    My PSA more recently started going up and an MRI suggested "slight progression" - I thought about going onto radiotherapy but was also offered a new trial. (The research doctors gave me this link to the official website).

    I was pleased I entered the study which they called it the UK  Yourphyto Trial which  involved taking a capsule with different concentrated foods as well as a probiotic or a placebo.  They then asked about my waterworks, erection and even measured my grip strength on top of blood test and scans.

    For me it seemed to have helped. Since the end of my time in the study, my PSA  has now dropped a little and stabalised. A repeat MRI is also stabilised again.  I'm please with this and also that the amount of times I got up a night reduced from 3 to 2.  Although I know I was on the food capsule, I was  not sure if I was on the probiotic. I am now pretty healthy, exercising loosing weight and what I liked about this trial was it gave me a focus and a sense of control.

    I am not sure if the trial is still open for men to join, although they tell me the results will be published in January , so maybe not.  

    If anyone is interested, I can fund out?