Just diagnosed with Ductal invasive cancer . Told of her2 need chemo. Already have left bundle branch block of heart worried chemo will affect this. Anyone on chemo had heart problems before ?
Just diagnosed with Ductal invasive cancer . Told of her2 need chemo. Already have left bundle branch block of heart worried chemo will affect this. Anyone on chemo had heart problems before ?
Hi Gareece,
A very warm welcome to our forum.
As our moderator Lucie advises, make sure to let your care team know exactly what your heart problems are, as soon as possible. The sooner they know of the problem, the sooner they can arrange a work around.
It is normal for anyone who is about to have chemo, to have their heart tested prior to treatment. When the results of this are known, the decision will be made by your care team, as to whether or not the chemo can go ahead. There are different types of chemo, so sometimes an adjustment is all that will be needed.
I do hope that your chemo can still go ahead. Please keep in touch and let us know how you get on. We are always here for you.
Kind regards,
Jolamine xx
Thank you jolamine. I'm fingers crossed the her2 might be negative as was equivocal. Then hopefully course of treatment will change. We also have a family holiday booked for Xmas n new year .two years in the making and we are taking my daughter and her two young boys and my son. I'm praying so hard we don't have to. Cancel. No holiday for them this year as we kept saying we are going for Xmas. I know health comes first but we won't get to do it again as youngest will prob want to be at home next year for Santa xxx shock diagnosis from screening in early August . The waiting for results is just the worst xx
Hi Gareece,
Getting a shock diagnosis from this, as a result of screening, does hit you "like a ton of bricks". However, it's just as well that we have routine screening, or it might never be picked up. As I'm sure you already know, the sooner a cancer is found, the better the outcome is likely to be. I do hope that this turns out to be HER 2 negative.
Make sure that you mention your planned holiday with the family, when you next see your consultant. They may be able to work around your treatment, if they know in advance. I agree about waiting for results - this was one of the worst parts of my cancer journeys. Do you know when you are likely to start chemo?
Please keep in touch and remember, that we are always here for you.
Kind regards,
Jolamine xx
Hi jolamine.
Nurse said when her2 is back ,fingers crossed end of week ,I'll know be in next 4:weeks either treatment start or surgery . How is your journey? I have a holistic call with Macmillan's in the morning.
How is your journey ?
Gareece xx
Hi Gareece,
I hope that your HER 2 results come in soon and that they are negative. I am glad to hear that you have arranged for a call with someone from Macmillan tomorrow and trust that you will find this helpful.
I am now 14 years down the line from diagnosis. I had a lumpectomy and 6 lymph nodes removed initially. I then took Tamoxifen for 1 year. Six months later, I found a lump in my other breast. This turned out to be pre-cancerous. A year after my first surgery, I developed a lump in my original breast, which was another cancer. Both of my cancers were Pure Mucinous, Stage 1. A year after the lumpectomy, I had a double mastectomy, followed by Letrozole for 6½ years.
I am fortunate that I still lead a busy and fulfilling life now, although there were a few bumps in the road, at the beginning of my journey.
Kind regards,
Jolamine xx
Hi Gareece,
I hope that your HER 2 results come in soon and that they are negative. I am glad to hear that you have arranged for a call with someone from Macmillan tomorrow and trust that you will find this helpful.
I am now 14 years down the line from diagnosis. I had a lumpectomy and 6 lymph nodes removed initially. I then took Tamoxifen for 1 year. Six months later, I found a lump in my other breast. This turned out to be pre-cancerous. A year after my first surgery, I developed a lump in my original breast, which was another cancer. Both of my cancers were Pure Mucinous, Stage 1. A year after the lumpectomy, I had a double mastectomy, followed by Letrozole for 6½ years.
I am fortunate that I still lead a busy and fulfilling life now, although there were a few bumps in the road, at the beginning of my journey.
Kind regards,
Jolamine xx
Wow. What a journey. How wonderful your cancer free and having a lovely life. Legend comes to mind! And how positive and reassuring you are for others
Thank you Jolamine xx
Hi Gareece,
This will be a tricky few months for you, but you will come through it all. How did your chat with Macmillan go?
Kind regards,
Jolamine xx
Hi jolamine.
Macmillans didn't keep appointment,it was a telephone appointment,just didn't hear from them! Still no news there's an MDT tomorrow so hoping nurse will ring me after that.
Have a lovely day
Gareece xx
I had good news in the face of what's not good news. I am her2 negative
So hopefully surgery soon xxx
Has anyone had her2 negative er positive and 22mm and had surgery first then just radiotherapy?
Hi Gareece,
I'm glad to hear that your results are better than they could have been. Have thy said what stage your cancer is? It is great news that you don't seem to need chemo.
Jolamine xx
So good news today in terms that I got surgery date in Oct. Got date for mag seed n pre op for next week and had dye injected for lymph nodes . They said I. Can go on my holiday for a week end of September. The original insurer cancelled as wont cover my unexpected diagnosis. Does anyone know a not over priced insurer I can with for insurance pre op. ? Nurse said after op I'm considered cancer free. So for our Xmas holiday they have also said I. Can go on I will look to reinsure. Any advise much appreciated xx