Hi Francesca

I have Stage 3c vulva cancer. Like you when I had my first biopsy I was told "it's probably nothing" then 6 weeks later I was told it was cancer. I've had 2 operations, 25 radiotherapy sessions and 5 chemo.

It was definitely a shock - I was only 36 when I was diagnosed. If you've got any questions about it or just want to chat feel free to reply here or send me a message..... I'm happy to talk about it.

Xx

Thank you so much for your reply.  My goodness you’ve really gone through it I hope that you’re in a good place now.   Was your cancer Basal Cell or Sqaumous Cell or another? 
I have an appt with gynae/oncologist next Friday.  So hoping treatment will start then.   
One of my main worries is the amount pubic hair I have in the area.  My letter suggests surgery.  
not sure you can answer this ….If areas of tissue are  removed and hair follicles are involved doesn’t that cause further issues.    I’m 76 - I think the amount of hair I have is due to past hospital procedures.  
Up until 80/90s Every hospital procedure I’ve had involved ‘shaving’

As you are so young I di hope that you are in a good place and doing well.   Best Wishes  xxx

Hi

It's Squamous Cell. Have they said much to you about what treatment you are going to have?

I had a total vulvectomy then a reconstruction using skin from my thighs for the first surgery so I lost all that area - hair and all! I do get hair growing back but not as much as before and I've never had any issues around hair follicles.

Xx

Hi I’m assuming your name is Hayley,

Mine has been diagnosed as Basal Cell.   Caused by exposure to the sun!!!!  I’ve never  exposed my ‘bits’ to the sun.   

The letter I’ve received is very reassuring offering surgery to remove and cure.   Again, I suppose until they open you up to see how far it’s spread  - they won’t know.    

I do hope you are now in a good place    Has your treatment ended or are you still going?  
I’m in Cornwall     Xx

This forum is very for support of patients going through similar experiences. X

Hi

Yes its finished....I have to get to 5 years before I'm classed as clear though. Have you had a date for surgery?

X

I’ll find out at my next appt on 23rd.   Atm - I’m sat with letters and info leaflets about cancer. 

just waiting ..xxxx

I’ll find out at my next appt on 23rd.   Atm - I’m sat with letters and info leaflets about cancer. 

just waiting ..xxxx