Hi.just been diagnosed with Bowel cancer, quite a large tumour in ascending colon thats broke through the wall, small spots on lungs and pelvis ( pet scan soon to check) also possible peritoneal disease, feeling reaĺly worried and scared.
Hi Maud, sorry to hear youre having to deal with this. Im newly diagnosed too due to have operation next week. Very scared but staying positive because of all the positive stories i have read, sending love and hugs and here if you need to offload
HI Thankyou so much for replying ,firstly I must come clean my name's Sylvia or Syl,Mauds my middle name,How long have you been diagnosed if you dn t mind me asking,I seem to be waiting ages for treatment to start,
Hi Sylvia just hopping on to say I’m back in the land of the living. The operation went well and they seem happy with the join. The after pain was not as bad as I anticipated (morphine was good) and am now back home after only 4 days in hospital. I hope this gives you a bit of comfort when it’s time for your surgery. Hugs x
Hi Kathy,really pleased to hear yr operation went well ,only 4 days in hospital wow that's fantastic ,any advice what i need to take in when I go in for mine,I'm feeling a bit nervous now waiting for my result,hope you are managing to rest at home a s being looked after xx
Thank you, my hubby has turned into Florence nightingale so definitely being looked after well. Take some lip balm as you will be a bit dehydrated, cosy dressing gown as I found it got chilly at night and upsize on pants. I wouldn’t take anything with a waistband as you won’t want anything touching your tummy. The days and nights are long once you are onto day 2 post op so if you can take an iPad with Netflix loaded on and some earphones, it passed a lot of time for me. Try not worry too much about your results they’re rarely as bad as we imagine in our heads. My tumour and lymph nodes have gone off to pathology and I’m forcing myself to think positive. Let me know when your op is and I’ll keep you in my prayers x
Hi Kathy lovely to hear from you,hope the recovery is going well,not so good news with me i m afraid,had meeting with surgeon last Tuesday and unfortunately the pet scan shows it has spread to my lungs and pelvis so I'l b e having chemo first,just waiting to hear if I need another colonoscopy first (whoo hoo),sounds daft but before the meeting id got it in my head that it had spread all over such as in my liver and bones so the fact it's just my lungs and pelvis I was a little relieved, xx
I know it’s crazy isn’t it that you can be relieved that it’s only on your lungs and pelvis but I know exactly where you’re coming from, 2 sites is dealable whereas all over would have been a disaster. They know their stuff and I’m sure they want to zapp those 2 areas first before having to wait for you to recover from your op. Keep the faith and stay strong. They didn’t say anything to me in the hospital just that they had sent everything off to the lab but I’ve deciphered from my discharge notes (T3 n1) that they have found cancer in some of the lymph nodes so will definitely be chemo for me I think. We can be chemo buddies comparing side effects. Take care xx
Yes that will be good, hope you dn t mind me asking but are you by any chance on Facebook I am but I don't post anything about my cancer on there apart from on a private bowel cancer group I'm in,xx
Yes I am on Facebook and I too don’t talk about my cancer on there. We have kept it just amongst our family and I haven’t even told any friends, I prefer to keep it not a secret but private, it’s my way of keeping it within my control. I’m not sure if this chat is now private between me and you, if so im happy to give you my name so you can put a face to the name x x
Morning Kathy,that's exactly how I feel although my main reason is our daughter who is Autistic and would get very upset with so r of the comments, she knows I have cancer and will be having treatment but we have not told her how serious it is xx
