Hi Maud, sorry to hear youre having to deal with this. Im newly diagnosed too due to have operation next week. Very scared but staying positive because of all the positive stories i have read, sending love and hugs and here if you need to offload 

HI Thankyou so much for replying ,firstly I must come clean my name's Sylvia or Syl,Mauds my middle name,How long have you been diagnosed if you dn t mind me asking,I seem to be waiting ages for treatment to start,

if you dn t mind me asking how did it all start,id been having stomach cramps for a while ended up in a+e a couple of times,went to doctors was asked to do a fit test which came back positive so sent for a colonoscopy,we're they found the tumour,had a endoscopy at same time but that was ok,plus had loads of blood tests done and they all came back ok apart from I'm slightly anemic

Virtually the same, stomach cramps for 3 months, change in bowel habits for 6 months so was given a fit test which came back positive, appointments came through quickly but I had trouble keeping down the bowel prep so had 2 abandoned colonoscopy due to unclear bowel. 3rd successful one where they saw the tumour. My consultant said it’s probably been there 12 - 18 months which is a bit scary to think what it could have done in that time. 

Morning Kathy,I see yr a early morning person just like myself, the hospital put mine down to Divertics so I spent a few weeks changing my diet I have lost some weight but put that down to not eating as much and cutting certain foods out.im still getting a slight twinge on my right side but since the consultant told me to follow a low fibre diet it's been much better.

Morning Sylvia I was never an early riser till I got this diagnosis but there’s always too much going round in my head these days. 
Have they told you why they are not operating first to get it out and treatment after? 

To be perfectly honest I didn't take it all in ,my husband was with me but we were both in a bit of a shock I'm going to see what happens after the pet scan.

Wishing you lots of luck for positive news from the scan 

Hi Sylvia what type of scan have you already had that showed it had broke through the wall and the spots on your lung and pelvis ? x

Ct scan, the pet scan is more detailed and shows all cancer spots up.

Hi Kathy just came to say hope all goes ok next week, il be thinkjng of you x

Thank you so much Sylvia. It’s been brought forward a day now to Wednesday so less time for me to stress about it, I’ll keep you posted how it goes x

Thank you so much Sylvia. It’s been brought forward a day now to Wednesday so less time for me to stress about it, I’ll keep you posted how it goes x

Oh thats good that theyve brought it forward.hope it all goes ok,im sure youll be fine x

Thank you x

Hi Sylvia just hopping on to say I’m back in the land of the living. The operation went well and they seem happy with the join. The after pain was not as bad as I anticipated (morphine was good) and am now back home after only 4 days in hospital. I hope this gives you a bit of comfort when it’s time for your surgery. Hugs x 

Hi Kathy,really pleased to hear yr operation went well ,only 4 days in hospital wow that's fantastic ,any advice what i need to take in when I go in for mine,I'm feeling a bit nervous now waiting for my result,hope you are managing to rest at home a s being looked after xx

Thank you, my hubby has turned into Florence nightingale so definitely being looked after well. Take some lip balm as you will be a bit dehydrated, cosy dressing gown as I found it got chilly at night and upsize on pants. I wouldn’t take anything with a waistband as you won’t want anything touching your tummy. The days and nights are long once you are onto day 2 post op so if you can take an iPad with Netflix loaded on and some earphones, it passed a lot of time for me. Try not worry too much about your results they’re rarely as bad as we imagine in our heads. My tumour and lymph nodes have gone off to pathology and I’m forcing myself to think positive. Let me know when your op is and I’ll keep you in my prayers x 

Hi Sylvia, you have been in my thoughts,  just wondering how you are holding up and if you have had a date for you surgery? 

Hi Kathy lovely to hear from you,hope the recovery is going well,not so good news with me i m afraid,had meeting with surgeon last Tuesday and unfortunately the pet scan shows  it has spread to my lungs and pelvis so I'l b e having chemo first,just waiting to hear if I need another colonoscopy first (whoo hoo),sounds daft but before the meeting id got it in my head that it had spread all over such as in my liver and bones so the fact it's just my lungs and pelvis I was a little relieved, xx

I know it’s crazy isn’t it that you can be relieved that it’s only on your lungs and pelvis but I know exactly where you’re coming from, 2 sites is dealable whereas all over would have been a disaster. They know their stuff and I’m sure they want to zapp those 2 areas first before having to wait for you to recover from your op. Keep the faith and stay strong. They didn’t say anything to me in the hospital just that they had sent everything off to the lab but I’ve deciphered from my discharge notes (T3 n1) that they have found cancer in some of the lymph nodes so will definitely be chemo for me I think. We can be chemo buddies comparing side effects. Take care xx 

Yes that will be good, hope you dn t mind me asking but are you by any chance on Facebook I am but I don't post anything about my cancer on there apart from on a private bowel cancer group I'm in,xx

Yes I am on Facebook and I too don’t talk about my cancer on there. We have kept it just amongst our family and I haven’t even told any friends, I prefer to keep it not a secret but private, it’s my way of keeping it within my control. I’m not sure if this chat is now private between me and you, if so im happy to give you my name so you can put a face to the name x x