I have been diagnosed with this aggressive cancer. Got a CT scan today, awaiting MRI to decide treatment plan. I am worried about the waiting as I don't know how quickly the illness will advance.
I'm sorry to hear that you've recently been diagnosed with carcinosarcoma. It's obviously a very worrying time for you and natural that you will have concerns and questions.
We know that for many people this period of waiting for tests and results so that the best course of treatment can be planned is often a difficult time. The unknown can be a scary prospect to face and it's understandable that you're anxious about what is happening with your body whilst you're waiting for news.
It can often help to talk with someone about how you're feeling and I wonder if you might find it useful to chat through your diagnosis and some of your concerns with one of our nurses. I know they will be happy to listen and offer any advice, information, and support they can ahead of your next appointment. If you'd like to talk with them they're available Monday to Friday 9am to 5pm on 0808 800 4040.
In the meantime, this post about waiting for news may give you some useful advice and tips to help you get through the next few days and weeks.
Keep in touch Cfb and let us know how you're doing.
Thanks for your reply Jenn. I am not really ready to talk to anyone yet. I haven't even told my family the full seriousness of the problem. I have had scans and have a meeting with my oncology team in 2 days to discuss what, if any, treatment is available. Hopefully they will have a plan. The time is dragging so and sleep is difficult. Roll on Friday.
That is such wonderful news that you are on your road to recovery after such a massive operation. Your post must give hope to others on this forum. I am in for my op on 17 th but will be thinking of you the next day and will be looking to your thread ( when I am able). Every good wish xx
Yes thank you. I am doing well , 11 days in now. Next step waiting for the results to see if any further treatment needed. I saw that you eventually got your good news, am really pleased for you x
Had my post op appt, doing well. However cancer has spread outside the womb so I have to have chemo and radiotherapy. Now waiting for an appt. Waiting, waiting. I don't know how long after a hysterectomy chemo would start, so many questions to ask.
