38 years old newly diagnosed breast cancer

Hi all, I have just been diagnosed with breast cancer. I’m 38 with no family history but was referred to the breast clinic after finding a lump where I had an ultrasound, mammogram and biopsy before the nurse told me the lump was highly suspicious. 10 days later and I went back to receive an official diagnosis, luckily feeling prepared after what the nurse had said previously and with my husband for support. I have HER2 positive oestrogen positive progesterone positive cancer, stage 2 grade 3. I have been given a treatment plan which involves chemotherapy and hormone treatment starting in a few weeks, then a lumpectomy, then maybe some more chemo before radiation. Obviously it has all been a shock and I’m really keen to talk to other women who have received a similar diagnosis. I’m scared about chemotherapy and how it will make me feel and look, and I’m worried about the effect of them shutting down my ovaries and blocking hormones - know it is required because the cancer is fed by hormones but I thought I had more time before menopause! & in all of this my biggest worry is how it will all impact my 4 year old daughter. She is my sunshine and I don’t want her to have to go through all that is ahead. Any thoughts, suggestions, tips would be welcome as I try and navigate this strange new world! Xx

Parents
  • Hi Hannah, I'm so sorry to hear about your diagnosis, I'm sure it has been quite a shock for you. I was diagnosed in January with invasive ductal carcinoma. I have two lumps, one lymph node affected and cells in breast tissue. I too am triple positive, so started my chemo first. I was put on EC-T chemo, I've so far completed my  three EC cycles and have my second T ( for me this is docetaxel) on Tuesday. I then have two more docetaxel left to go. When I started the docetaxel,  I also started phesgo injections due to being HER2 positive, these will last for a year as far as I know. So far I have had minimal side effects, although the tiredness has affected me more on docetaxel. I chose not to have the cold cap, due to already being prone to headaches. I have lost most of my hair, which was obviously upsetting when it happened and I did have a cry. I've got used to it now and have a lovely variety of headware. I also have a wig which I'm really happy with, which I wear if going out for a meal or just socialising. I'm 61, so a lot older than you and had to stop my hrt immediately, which caused me a few issues with hot flushes and night sweats. My gp was able to prescribe medication to help and this has improved considerably. I found out this week that I will be having bone infusions when chemo finishes, which I'll be having for three years. I don't think everyone needs these, I think it depends on where you're at with menopause. Next steps for me is a mastectomy, followed by radiotherapy. I will then start hormone blockers for 5-10 years. I wish you well on your journey moving forward. Feel free to ask any more questions if you have any, take care. Xx

  • Hi Pippin, I’m so sorry to hear about your diagnosis and that you so much for sharing your story. I haven’t had my oncology appointment yet but from what the surgeon said when he told me the diagnosis my provisional chemo plan sounds similar to yours - I was told I will have 6 cycles 3 weeks apart and the phesgo injections. It sounds like you are coping amazingly well with the chemo so far! Are you able to carry on doing your usual day to day stuff? In my head I’m imagining being completely wiped out with the tiredness and nausea/vomitting and wondering how I will manage to look after my daughter. Did you get your wig and headwear before you started the chemo? I’m wondering whether to do this so I don’t get caught short with hair loss! xx

  • Hi Hannah, I know chemo can be different for everyone, but overall I have felt fine. I do get quite tired, especially now that I'm on the docetaxel. I tend to sleep on the sofa for a couple of hours in the evening. I haven't suffered from any nausea or sickness at all, they give you lots of meds to prevent this in the first few days. I still manage to do the day to day stuff, hubby and son do help out when I feel particularly tired though. I have been out for a walk every day with hubby, this was a goal I set for myself at the start of my treatment. The first week after treatment, hubby has to hold my hand and drag me round, but we make it lol! Think the walking has helped not just my general fitness, but my mindset too, which is just as important I think. Off to have my 5th treatment shortly, then only two more to go, which is great. Hope all goes well with your oncology  appointment, be sure to write down any questions, so you don't forget on the day. Xx

Reply
  • Hi Hannah, I know chemo can be different for everyone, but overall I have felt fine. I do get quite tired, especially now that I'm on the docetaxel. I tend to sleep on the sofa for a couple of hours in the evening. I haven't suffered from any nausea or sickness at all, they give you lots of meds to prevent this in the first few days. I still manage to do the day to day stuff, hubby and son do help out when I feel particularly tired though. I have been out for a walk every day with hubby, this was a goal I set for myself at the start of my treatment. The first week after treatment, hubby has to hold my hand and drag me round, but we make it lol! Think the walking has helped not just my general fitness, but my mindset too, which is just as important I think. Off to have my 5th treatment shortly, then only two more to go, which is great. Hope all goes well with your oncology  appointment, be sure to write down any questions, so you don't forget on the day. Xx

Children