In shock: I have endometrial cancer which looks like stage one

Just had a call today following biopsies and heard the words you have cancer...that is not all that was said, and I'm still processing and filtering. I have endometrial cancer which looks like stage one, now waiting for an mri appointment. I have been reading all day, I know it could be so much worse, I'm aware of all the facts and stats, but I still feel in a state of shock, I can't bring myself to tell anyone because I'm not sure I can handle the reactions. I feel kind of numb, like it's all a strange dream. I apologise for not making any sense, and if I don't respond, I just needed to say out out loud somewhere, I have cancer, I still don't quite believe it !!! 

Parents
  • Hi, still bleeding but hopefully it will soon stop. Will ring nurse again Monday to check again if still am by then.

    any results for you yet?

  • Mine was very light bleeding twice. Only noticed when wiping after having a wee.

    please if you have any symptoms phone your GP. So glad I did.

  • Same as JoJo95, my symptoms were very light bleeding (hardly anything) that I noticed when wiping after a wee. From my initial appointment with my GP to having my hysterectomy was 7 weeks and 6 days…. a whirlwind time! Mine was graded 1a. Luckily it was caught and treated very early. Glad I listened to what my body was telling me. 

  • Mine too was 1a. Now nearly 3 weeks post hysterectomy and have been told no further treatment required.

    Now recovering slowly. I’m glad I phoned my GP.

  • That’s amazing both - so glad you caught it early.

    I may start my own thread when I know a bit more but with the greatest respect, hopefully it won’t lead to this.

    I have had a post menopausal bleed but it was more like a proper period, with a beginning, a middle and an end.  I am currently going through tests but my uterus isn’t playing ball and all 3 attempts at taking a biopsy have failed - even the last attempt under GA. I had a MRI on Monday to see if that would give any clearer indication of a polyp which was spotted during my first scan but as it only measures 7mm I’m not hopeful of a clear picture. 

    So for me at the moment it’s a waiting game but I don’t feel right. I had a very slight pinky discharge on Tuesday but that could be down to the hysteroscopy I had 7 days previous - it’s just odd though that I hadn’t bled before then as they told me I would. 

    Wish me luck ladies! And I would really appreciate any thoughts or feedback you may have on my particular experience. 

  • Mine was 1 very small brown blob no bigger than a little finger nail once n May and again in June was diagnosed with 1B and had hysterectomy 2 weeks ago not sure what other treatment I need yet a total whirlwind of emotions!

  • I had a pinky discharge after my initial biopsy but nothing after or before hysterectomy or since 

  • Hi , op follow up was as expected confirmation grade 1 stage 1B and also would like me to have vaginal Brachytherapy as an added safeguard so not to bad just glad no chemo or external radiation needed. Going to Cornwall for 10 days next week for a well earned break and a change of scenery.xx

  • Ah so glad you got answers and on the whole positive news. Glad you are getting away, we definitely deserve it! I too am going away next week,  looking forward to it too. Have a wonderful time. Keep in touch and good luck for your treatment x

  • How are you, Hope your holiday went well. I am fine just waiting for 3 Bracchytherapy treatments. Holiday break was great but went so quick I still feel anxious about recurrence but hopefully it will stop most of the time. Not looking forward to the winter but at least we’re feeling well. Xx

  • Hi, holiday was good, not always the good weather we like but what can we do.

    Then unfortunately first day back I went down with COVID which knocked me for six.

    on the mend now and now away with all the family, kids and grandchildren. Could have done with a few more days to completely recover but had been booked for a while.

    Glad you had a nice holiday, still all seems surreal to me. Hope your treatment goes well. You have this! Let’s embrace the winter this year… we have beaten cancer xx

Reply
  • Hi, holiday was good, not always the good weather we like but what can we do.

    Then unfortunately first day back I went down with COVID which knocked me for six.

    on the mend now and now away with all the family, kids and grandchildren. Could have done with a few more days to completely recover but had been booked for a while.

    Glad you had a nice holiday, still all seems surreal to me. Hope your treatment goes well. You have this! Let’s embrace the winter this year… we have beaten cancer xx

Children
  • Covid! What a nightmare still least your on the mend. It all seems unreal to me to and since the hysterectomy time seems to have flown by like a dream, perhaps I’ll wake up and realise it was {wishful thinking) Have a great time with your family and cherish every minute with them. Best wishes and keep in touch x

  • Thank you and I will. You take care too and let me know how the treatment goes x

  • Hi just thought I’d see if all was well with you. Brachytherapy was fine and am now waiting for first follow up at local hospital April 2nd . Feel fine and looking forward to the summer best wishes A

  • Hi, glad the treatment went well and you are feeling good.

    Im now also feeling good even managed a cruise last month on which we got some sunshine.

    After the operation unfortunately my night sweats returned and I struggled to get a good nights sleep. My consultant and GP advised me not to go back on HRT as the Cancer could return, so they have put me on an antidepressant which seems to be working.

    Im also looking forward to the summer.

    Im now waiting for my second checkup.

    Hope all goes well on yours. Take care J x