Prostate Cancer (Gleason Score 5+4)

Good afternoon All,

My name is Adebo, and I was diagnosed last week with prostate cancer. My Gleason score is 5+4, which appears to suggest there is a strong risk of the cancer spreading, but at the moment the cancer is localised in the prostate. I have received a letter from the hospital suggesting External beam radiotherapy & Robotic Prostatectomy are the preferred treatments, but I am yet to have a meeting with the medical team to discuss my treatment. I understand that radiotherapy is not recommended for men under the age of 60, which means my only option is Robotic Prostatectomy. I am 52yrs old and have no visible or physical symptoms. 

I was wondering whether anyone could provide me with any sort of advice.

Thank you all in advance

  • Hi Adebo, good to hear from you, and you have started your hormone therapy treatment with chemotherapy to begin soon. Adebo they have to tell you all possible side effects, nobody gets them all and many are treatable, always tell the nurses any concerns you have and they can usually help. best wishes with your treatment.

    Eddie

  • Offline in reply to eddiel

    Hello Eddie

    How are you keepinig. Thanks again for all the advice you gave to me.

    I have started Chemo and I am approaching my 4th cycle. The side effects have not been too bad, but I understand that they can get worse towards the end of the chemo sessions. Enough about me, how are you doing, Sir?

  • Offline in reply to Adebo

    Hi Adebo, great to hear treatment is in full swing and your coping pretty well, I hope things don't get worse though often with chemotherapy they give you enough so if you're struggling near the end, missing 1 or 2  cycles should still mean you got a high enough dose to be effective 

    I'm doing ok, waiting for a PSMA PET CT and my MDT meeting soon, plan A has run its course and time for plan B, after surgery which isn't for cancer, my best wishes to you and your family.

    Eddie 

  • Offline in reply to eddiel

    Hi Eddie, how have you been. its been a while since we communicated. last time we communicated you were waiting for a PSMA PET CT. You mentioned something about a plan B. Hope plan B was more productive. I have also finished Chemo and I had 39 sessions of Radiotherapy, but am hanging on. Have an appointment with the oncologist at end of June. Hope you are keeping well. I am not very good at this chat session and spent ages looking for you. Couldn't remember the name of the forum. Anyhow I have sent you a friend request. it will be great to catch up and see how you are doing, Sir. Take care and I will hopefully catch up with you in the next few days. God Bless

  • Offline in reply to Adebo

    Hi Adebo, they've certainly hit your cancer with everything, triple therapy has become a popular treatment option for more aggressive cancers, with better results, which is what I'll be wishing for you when you see your oncologist in a couple of weeks.

    I'm doing ok my friend, we had to skip plan B, and go to plan C, as my cancer is now in my spine. But treatment is working well at this time and side effects are manageable.

    Please send another friend request as I have neuropathy and accidentally deleted your first one.

    Take care Eddie 

  • Offline in reply to eddiel

    Hey Eddie

    Wonderful to hear from you again.  As the oncogist said they will 'throw the kitchen sink at it'. 

    Sorry to hear that the cancer has spread to your spine,  but glad to hear that treatment is working well and the side effects are manageable. As usual you always sound very optimistic and you seem to radiate a lot of positivity which is very infectious for anyone that is fortunate tenough to cross your path whether physically or digitally, so I am forever grateful for all the messages that has transpired between the both of us. 

    I do hope your neuropathy does not get worse. I was also told that there was a possibility of getting nerve damage during my chemotherapy session. I do have some tingling feelings on my big toe but it is manageable.

    I have sent you another friend request.

    Bye fir now

  • Offline in reply to Adebo

    Hi Adobe, thank you for your kind words, we will catch up soon, and I've accepted your friend request.

    Eddie