Prostate Cancer (Gleason Score 5+4)

Good afternoon All,

My name is Adebo, and I was diagnosed last week with prostate cancer. My Gleason score is 5+4, which appears to suggest there is a strong risk of the cancer spreading, but at the moment the cancer is localised in the prostate. I have received a letter from the hospital suggesting External beam radiotherapy & Robotic Prostatectomy are the preferred treatments, but I am yet to have a meeting with the medical team to discuss my treatment. I understand that radiotherapy is not recommended for men under the age of 60, which means my only option is Robotic Prostatectomy. I am 52yrs old and have no visible or physical symptoms. 

I was wondering whether anyone could provide me with any sort of advice.

Thank you all in advance

  • Offline in reply to Adebo

    Just one more question, Sir, will it be fair that your treatment is to cure?

  • Hi my Gleason score was 4+ 4 and I believe that yes I will be having hormone therapy as well as radiotherapy

  • Offline in reply to Adebo

    Hi Adebo, It's good to hear from you, My ERBT  external beam radiotherapy, ended April 2023, was 20 sessions from 3rd to 28th weekdays only  though i am on hormone therapy to September 2025 or until it stops working, though there are still more options to come, I am doing ok, still enjoying life. Good to see your testing is nearly done, your PET scan should give all the answers they need to start a treatment plan for you. How are you doing my friend, I know it's a difficult time waiting for results and treatment to start, best wishes to you and your family and good luck with the scan.

    Eddie

  • Offline in reply to NDA57

    Thank you so so much Nigel, 

    it has been quite an informative chat, and I really appreciate it.

    I hope you have a good weekend

  • Offline in reply to eddiel

    Hello Eddie

    Am a bit apprehensive, but I am ok. Thanks again for asking.

    Good to hear you in such high spirits.

    Just been chatting to a gentleman called Nigel, who provided me with a lot of information as well.

    Is your hormone therapy on a monthly basis as well?

  • Hey no problem I hope it helps in some way, I was never a big believer in forum chats but now I can see the benefits of them ,so thanks for the chat.

    enjoy the weekend

  • Offline in reply to NDA57

    Hi Nigel, looks like you have everything in hand, regarding the hot flushes, Sage tablets work well for most people, Holland & Barrett sell them. or should they get worse as in my case medroxyprogesterone stopped them in less than 2 weeks.

    Eddie

  • Hi Eddie thanks very much for that I will try the sage tablets first .I guess from your message you had them pretty bad and often.Many thanks

  • Offline in reply to Adebo

    Hi Adebo my Hormone Therapy HT started the day i was diagnosed in June 2022, with a 28 day course of Bicalutamide, which is what most guys start with this is a pill form of HT taken daily to block your production of androgen hormones, specifically testosterone and to reduce the risk of tumour flare when you start your HT injections, during or at the end of your course of HT pills. Most guys start with a one month HT injection then move on to 3 monthly ones, and 18 - 24 months is the commonest time to be on them, though a few may have them for a year or over 2 years, and Radiotherapy RT usually starts about 6 months after starting the HT injections. Mine and Nigels RT is pretty standard, 20 sessions, it used to be 37 sessions but that is very rare there days. The newest trend and proving just as effective with fewer side effects is SABR 6 sessions with a higher dose of radiation per treatment, and it is always worth talking about brachytherapy with your oncologist.

    Eddie

  • Offline in reply to eddiel

    Thank you for the information Eddie