Kind of diagnosed?

Hi all

I had my appointment at the breast clinic yesterday and had biopsies taken (which I didn't enjoy at all!!) but both the consultant radiographer and surgeon told me that despite not having the biopsy results they are pretty sure we are dealing with breast cancer. I kind of expected this outcome as I've had cysts before and this felt VERY different, but a little part of my brain is thinking hmm the results might be negative? My husband is more of a realist than me and he says the specialists will see this day in day out and he just doesn't think they'd tell me they think it's cancer without being pretty sure. Also I have two friends who were told the same in their appointments and they went on to have a formal diagnosis. 

I don't really know what I'm asking in this post...maybe I just feel the need to speak to people who understand what it's like to have that little spark of denial...

Parents
  • Hi Sharlou, 

    Im so sorry to hear about your possible diagnosis. I just wanted to ask what your lump felt like, as you say it felt different to cysts you’ve had before? X

  • Hi Sofie,

    With the cyst, it was like a pea shape and I could move it slightly when I applied pressure. It also gave me like a 'pulling' feeling. With the cancer lump, it was fixed, not tender at all and felt like a marble under the skin. It also caused a dimple. That said, all lumps can cause the same symptoms so please don't think that what I have described means bad news. Are you waiting for news? X

  • Thank you for your reply! 
    urm well, I found a lump but mine is flat with irregular edges, feels fixed to tissue but not completely immobile but then I’ve never felt a lump before so I’ve got nothing to compare it to. I don’t have any pain. I was referred to the breast clinic under the 2 week wait, and after a 10 day wait I went to the appointment and I saw the consultant who told me that they don’t currently have a radiographer so they couldn’t do any investigations and sent me away. Obviously I was/am devastated. The plan now is to wait for an ultrasound appointment but the anxiety is crippling me, so I’ve booked a private appointment xx

  • Ah bless you, I honestly think the waiting was the worst bit. The uncertainty is very difficult to deal with. When is your appointment? I can only speak about my experience, which may be very different to others, but as soon as the consultant felt mine he said it would be biopsied. I'm sure you've got lots of people telling you not to worry, which I struggled with to be honest as its almost impossible not to! But the fact remains that more lumps are benign than bad and even if it turns out to be bad, there is so much can be done nowadays xx

  • My private appointment is on Tuesday, which has made me feel better as it’s very soon. Yes the waiting is torture. Yes, everyone has said, you’re young, I’m sure it’s fine. Difficult to hear when I’m convinced of the worse case. I mean, the worst case for me isn’t even cancer, it’s incurable cancer that scares me more than anything. That probably sounds a bit strange, but that’s how my head has rationalised it. I’ve prepared for the worst, but I’m hopeful for the best xx

  • I know exactly what you mean, I lost my mam to cancer when she was only 38 so it's instantly where my brain goes. I'll keep everything crossed that it's good news on Tuesday xx

  • Sharlou 

    how did you get on any results on biopsy yet ? Xx 

  • Just heard back yesterday. It's invasive ductal carcinoma, but they've graded it as 1 which means I'll just need a lumpectomy and a small course of radiotherapy. So it was bad news, but fortunately not the worst news xx

Reply Children
  • Shar Lou 

    min sorry you had a diagnosis 

    yes that was same as mine very early stage but  after my lunpectomy they said that I might need chemo that threw me right off the track as it was graded 1 on initial diagnosis so why the change I didn’t sleep for weeks as I was told no chemo from day 1 

    but after another few tests it came back no chemo required 

    my biopsy and ultrasounds show no cancer in lymph nodes but after lunpectomy  they take sentil nodes to test one come back with a teeny trace  so that threw everything upside down it’s a rollercoaster but you will get through it 

    when is your operation booked for ? 
    will you have to take the hormone tablets afterwards, I have them for 5 years I’m on 2 years now so 3 to go x.  

  • I don't know any details yet, I've only had a call to confirm diagnosis and that's it. I should find out more next week. She did say it would be receptive to hormones so I assume I'll be put on the tablets too? 

    How have you been over the past two years? Do you get regular checks? Xx