Welcome to the Cancer Chat community Noodlequeen although I'm sorry to hear you've been diagnosed with paget's disease of the nipple.

Hopefully some of our members who have contended with this diagnosis will share their stories and advice with you soon, but if you have any questions or concerns you'd like to discuss with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very knowledgeable and will do all they can to give you any further information you are seeking at this time.

We're thinking of you Noodlequeen and wishing you all the best with your upcoming ultrasound and mammogram.

Kind regards,

Steph, Cancer Chat Moderator

Hi there just wanted to make contact, I am newly diagnosed with Paget's disease...I  had my results of second opinion last Friday when it was confirmed. I'm now waiting for a MRI which is scheduled for 25th June can't be done before as I'm recovering from my last operation. I had my milk ducts removed and a punch biopsy, it came as a big shock because I wasn't presenting many symptoms! Just itchy, slightly red and discharge...but my consultant was as shocked as we were!  My next operation is booked in for 17th July... how much will be removed will depend on finding of MRI...It's all so scary. 

Take care  

Hi Eddie - sorry to hear you're in the same boat!  Since my first post my lymph biopsies have thankfully come back clear, and no sign of anything else on the mammogram or ultrasound.  Earlier this week I had a wide local excision of the nipple so now have to wait a couple of weeks until I can hear whether they've found further cancer underneath the nipple.  This whole process seems to be nothing but waiting for test results which is understandable but also frustrating!  Trying to focus on healing and resting up for now.  

I hardly had any symptoms either, just a raw patch of skin on the nipple, so I'm lucky my GP took it seriously and sent me straight off to the breast clinic.  From diagnosis to surgery was just 5 weeks so at least they're moving fast.  It would have been even quicker but I'm pregnant and they had to wait until I hit the second trimester to operate!  I hope you get the results you're hoping for from your MRI.