Paget's disease - anyone have any experience of this?

Just got diagnosed with Paget's disease of the nipple after having an ultrasound and biopsy done a few weeks ago.  Has anyone else had this?  No sign of any secondary tumours on the ultrasound though I will be going for a mammogram and ultrasound of the lymph nodes next week to investigate further.

  • Welcome to the Cancer Chat community Noodlequeen although I'm sorry to hear you've been diagnosed with paget's disease of the nipple.

    Hopefully some of our members who have contended with this diagnosis will share their stories and advice with you soon, but if you have any questions or concerns you'd like to discuss with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very knowledgeable and will do all they can to give you any further information you are seeking at this time.

    We're thinking of you Noodlequeen and wishing you all the best with your upcoming ultrasound and mammogram.

    Kind regards,

    Steph, Cancer Chat Moderator