Mother just told has cancer of throat. We are waiting for biopsy results and see a dietitian. Unclear next step fo we arrange appointment?

Hi I live abroad so my mum was on her own when she got the news so she didn't take it all in. She can't swallow solid food and the nurse mentioned seeing a dietitian but she doesn't know if the appointment will be made for her or we have to arrange? Not surr if we have to contact them for results or how long it takes. The nurse marked it as urgent. 

Would I be allowed to talk to the nurse. She told my mother she could call her. I am heading home so I am with her for next appointments. Would also like to know what I should be asking? 

Sorry for a lot of questions 

Parents
  • Hi, I've just finished chemo and chemoradiotherapy for cancer in the gland under ear which made my throat close so couldn't swallow solid foods, paralysed vocal chords and was diagnosed last July by ENT. If ENT they will refer her to a dietician, if oncologist they will do the same. The speech therapist and dieticians are fantastic and will give her exercises to strengthen her swallowing muscles and throat area, prescribe her food supplements so that she'll get the nutrients needed, check her weight weekly and depending on the treatment she may be referred to have a PEG tube inserted in her stomach so can feed via a feeding tube/syringe, which sounds horrific but is literally a life saver if has radiotherapy as can't even drink as too painful and I just kept weight up with the tube as can throw feeds in there when had zero appetite.

    You can try to call the nurse, as you'll verify she's your mother with her date of birth, hospital number or nhs number and address probably and hopefully can talk with you. Just explain you've been abroad and find out what you can. But as she's had the appointment and been diagnosed, the clogs should now start moving and she'll get appointment letters or calls. If she has cancer, is it just the dietician that's going to call or waiting for oncologist? Scans are done in which case it will be oncologist next I would think but dietician was first for me as eating too difficult.

    Hope you get some answers and good luck. I've just got the all clear so living proof treatment can work x

  • Thank you for all the advice. It is really helpful. I hope you are keeping well. 

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