Hi Tj123, I was diagnosed with DCIS last year after being recalled following routine screening. My surgeon told me it was an early, very treatable form of cancer and after surgery and radiotherapy, I feel back to normal and extremely relieved it was caught early. I hope you get your treatment started soon and that it goes well.
I’ve also been diagnosed with DCIS. Just over 2 weeks ago I had an operation. I’ve just got the results back on Thursday. I need another smaller operation and got a cancellation for Wednesday. I’m also trying to stay positive. I think the fact that my breast cancer which is non-invasive, was caught so early is really good. Thank goodness for screening. I would not have known about it by just examining my breasts, because there was no lump. My cancer care nurse has told me that I will probably need 5 days of radiotherapy. The cancer clinic consultant has told me, that catching it early is exactly what they want and I would then have mammograms once a year for 5 years after treatment. My cancer nurse has also told me that I will have a quick recovery. All in all this points to a very treatable form of cancer. I hope this helps you to feel that your outlook is really good.
I’ve been diagnosed with DCIS pre invasive cancer after screening. I’ve had an operation just over a couple of weeks ago. Having got the results back on Thursday, I’m having a smaller operation on Wednesday to make sure there is a completely clear margin of tissue around a small area, which showed up on a magnified mammogram after screening. I am really lucky that my breast cancer was discovered so early. I have been told by my cancer care nurse that I will need 5 days of radiotherapy and I will have a quick recovery. At my initial diagnosis the cancer care consultant told me that this is exactly what they want …. to catch cancer early. She also explained after my treatment is finished I will have a yearly mammogram for 5 years. Fingers crossed this is a totally treatable form of cancer.
I hope this helps you to feel positive and be more certain about what lies ahead.
Hi I have just found out I am having mastectomy and reconstruction next Tuesday they are hopeful that is all will need, but have said will do biopsy from what they remove just to make sure ! Yes I will then be having yearly mammograms on my right side to make sure that remains ok
Today is the day before my next operation….. I’ve managed to get a good nights sleep!?! That might be different tonight though…?!?? AND I’m actually feeling positive about what’s happening tomorrow!
Hi Jstaves, I have exactly the same as you had and will be having a second, very small, operation next week as the margin was too small on the first operation. If you don’t mind my asking, how was your radiotherapy? How are you now? I am absolutely terrified.
Having a second operation did mean I got clear margins which was what the consultant was looking for.
When I went for the results, I found out they had got clear margins and I was really surprised that it was recommended I didn’t have radiotherapy.
My first biopsy results had showed both intermediate and high grade cells. The following results showed only intermediate cells. So I opted not to go for radiotherapy.
The cancer cells had remained in the duct and not invaded the surrounding breast tissue.
At the time I felt very relieved.
Everyone on my cancer care team have been really supportive and when I was in between operations I contacted Macmillan for extra support too. The nurses were able to give me the links, so that I could look up information about radiotherapy.
At the time I really thought I would need it. I watched videos of what was involved and recommended relaxation/breathing techniques.
I know this is a really scary time, but there is support out there to help you through this.
I now go for complementary therapies such as reflexology and massage to help me during my recovery.
Everyone does find a way through this.
Remember you’re amazing to have got this far.
Hang in there….
Please get back on n touch if you would like to chat some more…
Thank you so much for taking the time to reply, I’m so glad you are well again. Your experience sounds exactly the same as mine. I only found out today about the intermediate to high grade cells and it has given me such a fright. The surgeon hadn’t mentioned it and I only found out yesterday from her follow-up letter. I managed to speak to a nurse today but she was reluctant to discuss it, so I resorted to ‘Dr Google’ - never a great idea! I really hope there’s a clear margin this time and will do my best to get through the long wait for results.
Thank you again, your story is very encouraging. Very best wishes.
