I am feeling the same. Please feel free to message me back xx

Hi, how’s everyone doing? I’m still no further forward finding out if it’s DCIS or invasive, waiting for a phone call now which I think is even worse as it could happen at any time, I really hoped it would be before the weekend but looks like that ship has sailed :( xx

Only had biopsies on 13th

consultant breast surgeon meeting 20th

oncologist diagnosis meeting 27th

I also had my biopsies on 13th Feb, then told on 21st it was provisionally DCIS (pre-cancer) but further tests needed to check for invasive cells so it may get upgraded to invasive cancer. I’ve been in this limbo since then. Have they given you an idea of treatment plan yet? x

I've not enjoyed the last 2 days! Had loads of letters and phone calls from hospital so that's triggered a lot of anxiety. Didn't expect a letter to summarise my diagnosis appointment so that was a nice reminder lol. Got MRI and CT scan next week so will be able to understand what treatment I need. 

Hope you are all feeling better as the days gone on xx

Hi, I’m so sorry to hear your anxiety has been triggered again, hopefully it will start to settle when you have your treatment plan. It sounds like things are moving along fairly quickly so that’s a good thing, but also probably very overwhelming. I had a better day on Thursday then a worse day Friday.. so it’s very up and down. Just want some solid answers at this point xx

Hi Yorkshiremum and Em24ma.
I read your posts tonight and wanted to share my own experience. 
I had stage 4 high grade non Hodgkin’s lymphoma diagnosed in Jan 22. 
Your posts reminded me of when I was waiting for the results and a plan for chemo. I would dread bedtime knowing I’d be laying there for hours on end with my mind exploding with worry … my thoughts and fears would go round and round like the film credits. After what felt like weeks of lack of sleep, I was looking and feeling pretty dreadful even though I had very little symptoms prior to my diagnosis. My anxiety was off the charts and taking steroids didn’t help. I decided to embrace the night one night after buying a night light, a pen and a large ring note book.
That night I wrote down everything I was worried about … everything. Seeing it on paper made it real but it took most of the anxiety out of my head and onto the note pad. 
I then took each worry and made notes of what I could control and do if that particular thing happened. 
it was the absolute turning point for me. I felt I had taken some control back. I kept the note pad at the side of the bed through all of my treatment … it became my saviour and my best friend. 
I would allow myself a bad day … but made sure when I went to bed I made time to get ready for sleep … stay off the iPad and phone Googling every thing I could think of. I used the mediation body scan everyday which relaxed me … when you are so anxious your whole body is uptight and painful. Using these tools as I call them made an enormous difference I got some sanity back … I wrote down my fears and faced them head on …my neck and shoulder pain stopped and I started to feel better as I could sleep better and wanted to go out for walks. 
it’s still a hard journey I can’t pretend I still have a bit of a wobble now and then but I’ve been in remission 11 months now and it feels amazing. 
Just like it will for you x 

Thank you for this message. I did read it before but the last week was a bit intense with scans etc. Anyway. Today I got really positive news. They removed all of the sarcoma in the procedure I had done a few weeks ago. CT and MRI came back clear. I now have to have a hysterectomy in a few weeks but the consultant says this is best case scenario for me so while worried about the surgery I am relieved the cancer has not spread. 

I wish you all the best with your recovery and Em24ma I hope you have had more answers xx

I’m so happy for you what wonderful news. Such a great feeling about the results of your scans. 

I hope you go from strength to strength and that you have a speedy recovery from your hysterectomy. 

all the very best 

Jane x 

Aw that’s such brilliant news, I’m really happy for you! :)

I did get some answers, as I kind of expected it is invasive breast cancer however it’s stage 1 and the type that it is (hormone positive, Her2 negative) is relatively easy to treat, possibly even without chemo, so some positive news in there. Still very stressful times but this info does at least make me stop stressing so much that it’s spread all over my body so some of my physical anxiety symptoms have definitely eased xx

Hi Em24ma, 

It must have been hard to hear your diagnosis but it’s positive that they have advised it’s easy to treat  So pleased to hear the anxiety symptoms have eased too.

Sending best wishes to you x 

Hi Em,

Although an invasive cancer diagnosis is never welcome news, I am delighted to hear that it is stage one and may not even need chemo. I am sure that you must feel relieved that it hasn't spread. Have you any idea when surgery will start?

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Hi Em,

Although an invasive cancer diagnosis is never welcome news, I am delighted to hear that it is stage one and may not even need chemo. I am sure that you must feel relieved that it hasn't spread. Have you any idea when surgery will start?

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

I haven’t mentioned this yet as it’s been too hard.. but I’m also pregnant (only about 6 weeks), so this is obviously complicating things and delaying surgery. I think I am going to have a termination. I’m really struggling today.

That must be hard to deal with hun. But u need to do what is best for you in this moment, to get ur health in the best shape for fighting this

Oh my goodness. No wonder your head has been an absolute mess. Sending you so much love while you deal with whatever decision you make xxx

You are having such a hard time and must be so challenging but as Gail2020 has said you must do what’s right for you and ensure you are able to have your surgery and focus on getting your strength and health back. 
I hope you have some support close to you that is helping you through this too. 

Hi Em24ma, so sorry to hear that you now have to make a decision on your pregnancy, after all you've been going through. This must be such a difficult time and I really feel for you. I was pleased to hear that your cancer is very treatable and that chemo might not be needed, this must be a big relief to you. Good luck with everything moving forward. Xxx

Oh Em,

Although I am delighted to hear that you are pregnant, this couldn't have come at a worse time for you. What a heart-breaking decision to have to make. It's no wonder you are struggling. My thoughts and prayers are with you and, whatever decision you eventually reach, I hope that it is the right one for you.

Kindest regards,

Jolamine xx

How is everyone this week? Very tough one for me but time to get on with surgery/treatment now. I have an MRI on Monday followed by surgery on Thursday but I’m so scared now that the MRI will show something new or something that needs looked at and this will delay surgery, I really want the surgery so bad now. From looking on here it seems like loads of people get worse news from the MRI than what was shown on the mammogram and ultrasound so I’m very worried. Hope everyone else has had a better week xx

Hi Em24ma

I'm still in limbo land waiting for my hysterectomy mainly because i ended up needing antibiotics due to catching various germs from kids. Have my pre op appointment next week but still haven't got an actual date other than it is "soon". I'm both dreading it and relieved its happening. Not looking forward to menopause!!

I obviously have a different type of cancer (sarcoma) but I had the opposite experience with my MRI and CT scan. My consultant was expecting not so great results because of biopsy and type. But my MRI showed really positive results - I.e everything was pretty contained. So fingers crossed nothing else shows up on your mri too xx

Hi, 

sorry to hear you ended up having to take antibiotics and this is delaying things, but at least if the pre-op is booked it can’t be much longer until the op, but it’s a big operation so understand your dread. 

Although I had been told my mammogram was clear apart from the cancer we knew about, I have dense breasts because I am quite young so apparently there could be other stuff hiding in there that they can’t see. I hadn’t realised this until now and couldn’t have the mri any earlier because you can’t have them while pregnant. Xx

Hi everyone, how are you all now? Yorkshiremum - hope your hysterectomy went ahead and you’re recovering well? Gail how’s things with you? Have you started treatment? 
I’m I had my surgery a few weeks ago and it went well,  margins were clear and lymph nodes thank god clear. But I did get upgraded from grade 2 to grade 3 which means chemo, I have first oncologist meeting on Wednesday.

xx