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Vulva Vin 1&2 - did you have surgery or go with monitoring?

Lightbabe
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Hi all, I’m new and hoping to get some guidance from people who have been where I am now.  I have previously had DVIN 3 cells removed from my labia in November.  I had another biopsy on my vulva and they have found VIN1&2 Cells.  The consultant is recommending monitoring but I am unsure.  I don’t like the idea of having pre cancerous cells ans just waiting for them to change.  For those with DVIN 1&2, did you have surgery to remove or just monitor? Thank you 

  • Welcome to the forum Lightbabe although I'm sorry to hear about the VIN1&2 cells that were found during your biopsy and the concerns you have about monitoring.

    Hopefully some of our members who opted for monitoring will share their experiences and advice with you soon but if you'd like to discuss this further with one of our cancer nurses, you can contact them on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to answer your questions and hopefully put your mind at ease.

    You may also be able to get further information and advice about this from Jo's Cervical Cancer Trust.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Offline in reply to Moderator Steph

    Hello Lightbabe. How are you? Speaking from experience, I think if it’s not so bad the VIN, then monitoring is your best option. There’s nothing really you can do. Had similar experience in 2019, had surgery to remove it in 2020. It reoccurred, removed it in 2022 and 2023 December. The tissues removed from the surgery showed cancerous cells. (SCC). The good news was that it’s early stage. I had another surgery this January. You may be lucky, yours may never become cancerous. Keep up with your appointments and follow your doctor’s advice. Best wishes 

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