Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

  • Hi Carol,

    I'm glad to hear that you have already signed up for the next moving forward course in September. I'm sure that you'll get a lot out of it, as well as meeting people in a similar situation to yourself. Look out for some of the other courses that Breast Cancer Now run, as I'm sure that you'll find some of them beneficial too.

    Don't forget to let us know how you get on.

    Kind regards,

    Jolamine xx

  • Hi Pippin,

    They run a number of different courses - all of them well worth attending.

    I am just loving this weather.

    I hope that all goes well for you today and that you can arrange to go on holiday after this.

    Kind regards,

    Jolamine xx

  • Hi Carol, you'll have to let me know how the moving forward course goes, it's something I might be interested in. I have been fine while going through treatment, but think I might struggle later with fear of a recurrence. So pleased to hear that you had a lovely relaxing weekend. Just sitting here waiting for oncology phone call at the moment, then off to have stitches out of my foot. Tomorrow I have phesgo injection and my first zoledronic acid infusion. Also have an mri booked in next Monday, to check out blood vessels for diep flap reconstruction. Xx

    Hope everyone else has enjoyed a lovely weekend and you're all feeling ok. Xx

  • Thanks, will take a look. I too am loving the weather, it's gorgeous. Will update later, hoping I might be able to book the flights today, fingers crossed they'll be some available. Accommodation was booked a year ago, but didn't book flights when I got diaignosed in January. Really didn't think we'd be able to go and I'd have to cancel. Xx

  • Hi Pippin. 
    how have you got on today ? Really hope you’ve got dates and a plan 

    xx 

  • Hi NGS, had oncology phone call which went well. She didn't seem concerned that surgery wasn't until the 8th of October, as I'm on the phesgo injections. Had my stitches in my foot removed and all healed well. I'm due my next phesgo injection tomorrow along with first zoledronic acid infusion. Only thing is everything I've read online say you start infusions after surgery  but I haven't had surgery yet. Might put up a post to see if anyone has had it before surgery. Always seems to be something to stress about. On a positive note, I've booked our flights for our holiday. Xx

  • Hi Pippin

    I had my first zoledronic infusion in May and then surgery in July.  My surgeon was not concerned by this at all and I’m not aware of any complications from it.  

    woohoo to booking the flights 

    xxx

  • Thank you do much for your promp reply, I can relax now. I was worried if I had it tomorrow and shouldn't be having it yet, it might affect my surgery going ahead. I seem to be stressing more at the moment, can't wait to get back to my walking tomorrow. Hopefully will relax me a bit. Xx

  • Hi everyone, how are you all doing at the moment?

    Had my first zoledronic acid infusion today, now have to take a calcium tablet every day. Also had my phesgo injection, husband now signed off to do these at home, which is great. Got my mri on Monday, to check blood vessels in my tummy are good enough for my surgery. Was told today my next heart echocardiogram is due on 10th Octobe. Explained I'm having surgery on 8th, so they're going to make it before surgery. Getting excited now about going on holiday, could certainly do with a break. Was also lovely to get back to walking this morning, I've certainly missed it. Hope you're all having a good week. Xx

  • HI everyone,

    Thought id just pop on to say hello and to see how you're all doing. Sounds like you've all got lots going on but hopefully things all moving in the right direction?

    NGS - Great news that you had your first enhancer. Hope you're not getting too frustrated with not being able to do very much in terms or lifting etc but hope you're feeling ok and that you feel things are moving in the right direction?

    Pippin - so happy you have a date for your op, and that your stitches have been removed and that you have managed to get out for a walk AND that you've booked your holiday...and that hubby can do the Phesgo injections too! All sounds positive. How was the zoledronic acid infusion? I think i have to have that too at some stage. Are there side effects to that or is that the one that helps your bones?

    I am currently in Jersey staying with my mum and dad and my sister is over here too...my brothers live here as well so have been catching up with them and my kids have been having a lovely time hanging out with their cousins.. Mty daughter is doing surfing lessons this week which she is loving. I finished my radio on Friday last week and so far feeling pretty good! Energy levels are all good, i actually feel pretty normal which is a nice feeling!!...my chest is a tiny bit itchy but that's slightly clutching at straws as it's barely noticeable...so yeah radio seems to have been fairly straight forward...touch wood!! I know they say you can keep "cooking" for a further two weeks after treatment so just enjoying feeling good at the moment and hoping side effects dont present themselves!

    I've had my second zoladex injection which shuts my ovaries down and then started anastrozole about 2 weeks ago and other than some hot flushes at night so far, so good...but again they do say it can take a couple of months before side effects really show so yes just enjoying the now!!!...

    Carol - Are you still feeling ok after your radio with tiredness and skin? Hope so! and hope you are feeling a little less lonely...we are here! Just read that you said you were in derbyshire....my best friend lives there so have been many a time...although sadly not enough recently. I miss her!!!

    Sending lots of love xx