Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

  • Ah thanks so much for this Pippin, super helpful. Yes i should have started it before chemo, that would have been best! But perhaps better late than never!

    My daughter is off sick again today. She was up in the night, and was then physically sick and then sick again today!!!! She's got a slight temp and very sore throat...i think it's all the swallowing with her throat that's making her sick rather than a tummy bug!?....who knows! Hopefully after a quiet day today and a good sleep tonight she'll feel a bit brighter in the morning!...

    Anyway how are you feeling today? Hopefully yet more energy today? How's your throat and your tastte and your joints? Did you have the last injection today? I hate those!!...This week seems to be going to quickly that i can already feel that Tuesday is going to be here in no time!...but then i guess i get to tick another one off!

    Sorry there is confusion about your op and whether you'll have reconstruction at the same time or not...i think every trust is slightly different. I think i would want them to do it all at once but i totally understand their reasons for not, infection etc. When is your next appt with your surgeon?

    Hope you're having a good day..,.i have no doubt you'ev managed to get out for a walk!! xx

  • Hi Greeny80, sorry to hear your daughter is still unwell, hope she feels better for the weekend. Hopefully you will manage to dodge all this illness, so it doesn't delay your treatment. I think it still could be worth trying the polybalm, it still might prevent further damage moving forward. I'm feeling pretty good today and went out for my walk this morning. It did start raining about 5 minutes in, but I had a brolly and it wasn't too heavy. I think the taste seems to be improving a bit, either that or it's only with certain foods. Will be quite happy if it only happens for a few days after each cycle. Throat and joints also much better too. Having my last injection tonight and then I can stop isolating, hooray! Seeing mum and dad tomorrow, daughter and partner on Saturday and other daughter, son in law and grandchildren on Monday. Also going out for dinner with hubby tomorrow night. Such a busy week and then start all over again. It does come round quickly doesn't it?  When I had my review before last chemo, they said they would recommend another appointment with my surgeon. So far I still have not heard anything, so have no idea when it might be. Hope you have a lovely weekend and all goes well on Tuesday. Xx

  • Hi NGS, just wondered how you are feeling at the moment. Haven't heard from you in a few days, hope you are doing OK. Xx

  • Hi all, hope you're all having a lovey day. Just wanted to give you a quick update regarding lung ct scan results. Spoke to BCN this afternoon, she was able to tell me that the nodules are stable and have not grown, which is amazing news. She said the results will need to be reviewed by my oncologust who will decide whether he wants the scan repeated in another 3 months. Very happy with this news, it's such a relief. Hope you all have a lovely weekend. Xx

  • Hey Pippin,

    Oh that's great news! So glad you had your results back and that the nodules aren't growing. Fab news. Something nice to celebrate going into the weekend!

    Enjoy the sunshine and your walks this weekend.

    xx

  • Hi Greeny80,  hope you had a lovely weekend and that the family are all well now. I had a great weekend and enjoyed catching up with the family. I have felt really well, with lots more energy and spent yesterday afternoon doing some gardening. I think the last few days are the best I've felt since the start of my treatment. Hadn't expected this once  I started on the docetaxel, so a pleasant surprise. I just hope it continues through the rest of my treatment. I'm off to my daughter's this afternoon, to see the grandkids when they come out of school, really can't wait to see them. Will be thinking of you tomorrow, hope all goes well with your next treatment. Xx

  • Hi Pippin,

    Ah what a lovely message to receive! So happy you're feeling good. It's such a relief when your energy levels come back up and your feel normal again..or as close to normal as you can! It's so nice!...after each round i can totally feel when that happens when my energy is coming back and it's the best feeling!....So yes that's great news and sounds like you've had a lovely weekend and hope you have a wonderful time with your daughter and your grandkids this afternoon It will be nice for them to see you feeling good!

    We had a good weekend, my son was in a triathlon  yesterday so we went and watched that, he loved it. Was a very sweet event. 

    Just been for a run with some friends making the most of the sunshine and feeling good before tomorrow!! It's always a bit of a weird feeling the day before the next dose knowing you're going to be feeling pretty rubbish again for a few days..BUT also so nice to know that i'm ticking another one off! Nearly there!!! 3 more to go!

    Have a lovely afternoon and enjoy the renewed energy!!

    xx

  • Hi Greeny80, I was thinking you today, hope all went well with you treatment and that you're feeling OK. Xx

  • Hi Pippin,

    It's really great to hear that you are feeling so much better and that you managed to catch up with family at the weekend. I hope that you had an enjoyable time with your grandchildren when they came out of school - they're probably the best tonic you could have.

    Jolamine xx

  • Thank you Jolamine, it has been lovely seeing everyone. I'm actually meeting up with all the kids and the grandkids again on Saturday, before my next treatment on Tuesday. It will be great that we'll all be together. It will keep me going, as I'll  be isolating for another 10 days after treatment. I know I don't have to do this, but so far it has worked well for me. I've just been going for walks, but not mixing with people until injections are finished and have managed to stay well. I hope you are keeping well. Xx