Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Happy Easter to all you lovely ladies, I hope you are all feeling well at the moment.

    I've just had my results from my first mammogram which was all clear, so fantastic news. Still waiting for my second surgery, which is a little disappointing, as was led to believe in January, that it would be only a 3 month wait. Now say unlikely to be during the summer. 

    Only 2 more phego injections to go thank goodness, but will still be having zoledronic acid infusions. The letrozole is causing me some joint pain, mainly in my knees, but I find exercise does help. 

    I'm due to be a nanny for the 3rd time in October, which is wonderful news. Will be my eldest daughter's first baby, after trying for quite a while. She has polycystic ovaries, so wasn't sure she'd be able to have children, so we're all delighted.

    How are you all getting on? Xx

  • Hi Pippin,

    I am delighted to hear that your mammogram was clear. This must be a great relief for you. I am really sorry to hear that your reconstruction is likely to be a lot longer than you first expected. I am sure that you won't be sorry to finish the Phesgo injections.

    I am glad to hear that you find that exercise helps the pain in your knees - I had to have both of my knees replaced when I was taking Letrozole.

    I'm sure that this is a very exciting time for all the family, now that your eldest is expecting and I hope that it all goes well for her. My daughter is in a similar position, but she still has no family and we don't expect that it'll happen now. Still, I have 2 beautiful granddaughters, so I feel blessed.

    Jolamine xx

  • Hello ladies 

    it’s been a while - life seems to get in the way most days.  I wanted to check in and see how everyone is getting on - I’m part way through the Hope course with Macmillan which has reminded me of how invaluable I found your support during the thick of treatment 

     Be lovely to hear from you all 

    Norma x 

  • Offline in reply to NGS

    Your words have just reminded me how invaluable I found the support here too.

  • Hi Mary how have you been doing ,its quite a while since we spoke on here ,I hope you are doing well ,just thought I'd say hello when I realised it was you x

  • Hi Pipppin,

    I have been thinking of you and just wondered how you are coping?

    Jolamine xx

  • Hi Norma,

    Lovely to hear how you're getting on. How are you finding the Hope course? I hope that it's helpng.

    Regards,

    Jolamine xx

  • Thank you, Jenny - so far so good. Still seems surreal at times. I keep the NHS busy - dietician today, renal consultant tomorrow and chest x-ray Friday.

  • So glad to hear you are doing good Mary ,its still hard to believe considering the amount of surgery you had to endure that things are going well , long may it continue my best wishes to you for all your coming appointments ,I trust they will all go well ,lovely to talk to you Mary ,I hope you and your husband continue to enjoy life x

  • Hi Mary,

    I'm so relieved to see you back on the forum again. I replied to your last message 5 months ago and was worried when I heard nothing. It does sound as if you are keeping the NHS busy, but I hope that you are feeling a lot better by now. It's good to hear that the NHS are still keeping a close eye on you - after all that you've been through, this is only right!

    Kind regards,

    Jolamine xx

  • Thank you. My renal consultant said the results of my blood test were stable and told me that I am very lucky and I am marvellous.

  • Thank you. I'm sorry I missed seeing you before.
    My renal consultant yesterday said the results of my blood test were stable and told me that I am very lucky and I am marvellous. I do tire easily still but that's OK. After all, that might be partly because of getting older too - D.V. shall be 78 at the end of November.

Reply
  • Thank you. I'm sorry I missed seeing you before.
    My renal consultant yesterday said the results of my blood test were stable and told me that I am very lucky and I am marvellous. I do tire easily still but that's OK. After all, that might be partly because of getting older too - D.V. shall be 78 at the end of November.

Children
  • Hi Mary,

    You're only a year older than me. It's 16 years now since I had my first cancer surgery and 15 since the second. I still suffer with extreme fatigue after all this time, but we're still here and that's what's important! I am delighted to hear that your bloods were stable. You are indeed very lucky and marvellous, or should I say, a true marvel!

    Stay well!

    Jolamine xx