Hi ladies,

Happy New Year,

Just been trying to catch up on the messages. I think you're both awaiting appts with consultant Jolamine and biopsy results Pippin24  Keeping everything crossed and hope you have a gorgeous time away with your grandkids Pippin. Sounds lovely, really hope you will have received some positive news before you go..

Jolamine  are you waiting for results for your husband too? and then waiting to see if you can adjust your meds etc? How are you feeling about the tilt test not ruling anything out? Hope your'e feeling ok and hope a slight tweak of the meds might make a big difference to how you're feeling and prevent any fainting etc. 

My daughter is still not back to school!! She goes back today...longest christmas ever!!...but we popped over to Jersey for a few days to see my parents and family which was so lovely. Ready for some routine now though!!!

I"m feeling good at the moment, my hormones seem to have levelled so other othan a few waves of nausea/hot flushes i'm feeling pretty much back to normal...well a new normal! Having regular blood tests to make sure my body is coping with the new drug, abemaciclib, but so far so good! They can tweak the dose if needs be so we'll see how my body deals with it all...the main side effect is kidney failure so they take regular bloods to keep on top of that! Otherwise all good and am feeling hopeful and optimisitc about a new year with hopefully less hospital visits!...although i think i'm on 5 already and we're only in Jan!!!!

HOpe you're doing ok and keep me posted on any news and results. Sending all the positive vibes your way.

NGS  How are you doing? 

xx

Hi Greeny,

A Happy New Year.

Great to hear from you and to find that you are feeling good at present. Sorry to hear about the nausea and hot flushes. Have you spoken to your care team about these symptoms? There is medication to help with these. I hope that all continues to go well with the tests for Abemaciclib. Your daughter has certainly had a lovely long holiday, but I'm sure that you will have an element of relief to see her back to school. It must have been lovely to be able to pop over to Jersey to see your family for a few days.

We are still waiting for a number of different tests. Hubby is waiting for an op to try and promote healing of a long term infection. He is still waiting on his biopsy results. He also has appointments for his heart and a geriatric assessment next week. I was relieved that my tilt test didn't show up anything untoward, but upset that this still doesn't leave me with any answers. I have been exceptionally tired over the festive period and think that I may have found a solution myself. I had to stop taking one of my Diabetic tablets a year ago and my GP was happy to leave this for a year, before reviewing. I have just taken my blood glucose and it is far higher than it has ever been. I shall monitor this for the next week, before I return to see what my consultant thinks should be the next move, following my tilt test.

I saw my Lymphoedema nurse last week. The new sleeves she prescribed on my last visit, are much more comfortable than my previous ones, but they kept sliding down my arms. She has changed the measurements and prescribed new day and night sleeves for my legs and arms, so I'm hopeful that we're making headway on that front. We certainly cannot complain about the NHS, since we moved down here last year!

Let's hope that 2025 is a happier and healthier year than 2024!

Jolamine xx