Hi everyone, hope you all had a lovely Christmas and would like to wish you all  a Happy New Year. It would be lovely to hear from you all and see how you are all doing. 

I finished my radiotherapy on Christmas eve and all went smoothly. My tummy wound has now healed and I no longer need to go for wound checks. I finally got my ultrasound to check the lump in my armpit on the reconstructed breast side. They think it us probably fat necrosis. However, they decided to take three biopsies, just to be sure. This did come as a bit of a shock, as now have another wait for results. I have an appointment to go and see the plastic surgeon on 24th Jan, it should have been after 6 weeks, but got missed. I'm hoping he'll give me some idea when I can have breast reduction on healthy breast. I have heard people say they've had to wait quite a while for this to be done. I'm really hoping they don't make me wait too long. Look forward to hearing from you all. Xx

Hi Pippin,

Happy New Year. I hope that you enjoyed Christmas with your family. We certainly did.

I am delighted to hear that your wound has cleared up at long last. I am also glad to hear that you have had your ultrasound and sincerely hope that your results will be clear - I am keeping my fingers crossed! I am sure that it must have come as a shock to have 3 biopsies. Did they say when your results will be back? WE are still waiting for hubby's biopsy results.

Despite your anxious wait, I am sure that you will feel more reassured to have these done in the long term. I see that you have also had an appointment through to see the plastic surgeon and hope that it won't be too long before he can fit you in for surgery.

Jolamine xx

Hi Pippin,

Happy New Year. I hope that you enjoyed Christmas with your family. We certainly did.

I am delighted to hear that your wound has cleared up at long last. I am also glad to hear that you have had your ultrasound and sincerely hope that your results will be clear - I am keeping my fingers crossed! I am sure that it must have come as a shock to have 3 biopsies. Did they say when your results will be back? WE are still waiting for hubby's biopsy results.

Despite your anxious wait, I am sure that you will feel more reassured to have these done in the long term. I see that you have also had an appointment through to see the plastic surgeon and hope that it won't be too long before he can fit you in for surgery.

Jolamine xx

Hi Jolamine, good to hear that you enjoyed a lovely Christmas with your family. I'm trying not to worry too much about results, I feel fairly confident it's nothing to worry about. They said I should hear in a coiple of weeks. I hope your hubby is doing OK while waiting for his results. How are things with you at the moment? Xx

Hi Pippin,

Fortunately, hubby's dementia helps him during this wait, as he doesn't seem concerned at all - I'm not sure that he even remembers having the biopsy. My tilt test didn't show up anything too untoward, so I expect that we'll have to start juggling with my medication again. I'm just waiting to see.

I hope that your results come through soon.

Jolamine xx

It's good that your husband isn't experiencing the anxiety of waiting for his results, although it is very sad that he has dementia. Good to hear your tilt test didn't show any problems. Hopefully, tweaking your meds will sort out the problems. Xx

Hi Pippin,

I return to the hospital next week to see what my consultant has decided to do, so fingers crossed. Do I take it that you are still waiting for your results?

Jolamine xx

Yes, I'm still waiting. Had biopsies last Saturday, hopefully will hear something after mdt meeting on Wednesday. They did say that I'd get a phone call. I'm going away on Friday, kids bought a weekend break for us all for Christmas. Hoping for the all clear before we go. Let me know how you get on next week. Xx

Hi Pippin,

I hope that you manage to get the results, before you go away. This would let you go away on your break worry free, which would be great. I hope that you have a great time.

I will certainly let you know how my appointment goes.

Jolamine xx

Hi Jolamine, that's what I'm hoping for. We're going to a cabin in the woods, which will be so peaceful. Can't wait to go walking through the forest with the grandchildren, we'll also be doing lots of arts and crafts. Xx

Hi Pippin,

This sounds idyllic. Let's hope that it stays nice and dry, so that you can go out foraging in the woods for your arts and crafts materials.

Jolamine xx

Hi ladies,

Happy New Year,

Just been trying to catch up on the messages. I think you're both awaiting appts with consultant Jolamine and biopsy results Pippin24  Keeping everything crossed and hope you have a gorgeous time away with your grandkids Pippin. Sounds lovely, really hope you will have received some positive news before you go..

Jolamine  are you waiting for results for your husband too? and then waiting to see if you can adjust your meds etc? How are you feeling about the tilt test not ruling anything out? Hope your'e feeling ok and hope a slight tweak of the meds might make a big difference to how you're feeling and prevent any fainting etc. 

My daughter is still not back to school!! She goes back today...longest christmas ever!!...but we popped over to Jersey for a few days to see my parents and family which was so lovely. Ready for some routine now though!!!

I"m feeling good at the moment, my hormones seem to have levelled so other othan a few waves of nausea/hot flushes i'm feeling pretty much back to normal...well a new normal! Having regular blood tests to make sure my body is coping with the new drug, abemaciclib, but so far so good! They can tweak the dose if needs be so we'll see how my body deals with it all...the main side effect is kidney failure so they take regular bloods to keep on top of that! Otherwise all good and am feeling hopeful and optimisitc about a new year with hopefully less hospital visits!...although i think i'm on 5 already and we're only in Jan!!!!

HOpe you're doing ok and keep me posted on any news and results. Sending all the positive vibes your way.

NGS  How are you doing? 

xx

Hi Greeny,

A Happy New Year.

Great to hear from you and to find that you are feeling good at present. Sorry to hear about the nausea and hot flushes. Have you spoken to your care team about these symptoms? There is medication to help with these. I hope that all continues to go well with the tests for Abemaciclib. Your daughter has certainly had a lovely long holiday, but I'm sure that you will have an element of relief to see her back to school. It must have been lovely to be able to pop over to Jersey to see your family for a few days.

We are still waiting for a number of different tests. Hubby is waiting for an op to try and promote healing of a long term infection. He is still waiting on his biopsy results. He also has appointments for his heart and a geriatric assessment next week. I was relieved that my tilt test didn't show up anything untoward, but upset that this still doesn't leave me with any answers. I have been exceptionally tired over the festive period and think that I may have found a solution myself. I had to stop taking one of my Diabetic tablets a year ago and my GP was happy to leave this for a year, before reviewing. I have just taken my blood glucose and it is far higher than it has ever been. I shall monitor this for the next week, before I return to see what my consultant thinks should be the next move, following my tilt test.

I saw my Lymphoedema nurse last week. The new sleeves she prescribed on my last visit, are much more comfortable than my previous ones, but they kept sliding down my arms. She has changed the measurements and prescribed new day and night sleeves for my legs and arms, so I'm hopeful that we're making headway on that front. We certainly cannot complain about the NHS, since we moved down here last year!

Let's hope that 2025 is a happier and healthier year than 2024!

Jolamine xx